I'd never heard of NHS Continuing Care until it was brought to my attention by my local contact at the Alzheimer's Society.
It appears the local Primary Care Trust were in the same position, because my contact had to walk them through the document and short list of criteria that forms the basis of being eligible, or not. At that time, their own guidelines said that they would be writing formal procedures for NHS Continuing Care a couple of years later.
Once it was pointed out to them that my wife met at least 3 of the [I think] 5 possible criteria - only one of which had to be met anyway - the funding was agreed quite quickly. It is reviewed annually, though it is not expected that the situation will change - certainly not improve, of course healthwise.
So I'd suggest getting help from AS. I was extremely fortunate at the time that my particular contact was at the Society, and specialised in Early Onset patients, so knew more about NHS Continuing Care than most.
The doctor I had thrown off Jan's case had been pressuring me to find a care home - paid for by me - that in my area would have cost upwards of £35,000 per year. That would have been an impossibility, and the pressure of that [because they wanted to free up her place at the assessment centre] was appalling.
Good luck - try and get the Society involved.