Really useful and historically interesting also - thank you Palerider. Decision support tool being guidance and not decision making and how its use is not necessarily correct - worth thinking about. e.g. I am fascinated about how assessments about behaviour are measured for example, with dementia the behaviour will change with time, as the disease progresses and of course the setting affects it too.
MiL currently in a nursing home on a trial basis as recommended by social worker. We filled in the financial assessment as we have LPA on finances, we don't have it on health and welfare. We have had two letters, the first was how much she would pay with carers visiting her at home, but by then she was in a nursing home, the second explains they are taking £296 a week backdated to when she entered the home on what they call a short term case basis - this leaves her with about £32 a week, which just covers her council tax, added to this is contents insurance, insurance on her boiler etc. the cost of her furniture which is still in storage because we had to clear space for hospital bed, Sara steady, commode and hospital chair, which means we now have to transfer £600 from her savings which are under the £23,000 threshold just to pay her bills on the flat. We will do this but the next stage is that if Social Services agrees that she is better kept in the nursing home, (and this seems most likely) there will be another financial assessment and we should have the 3 month disregard during that period?
I have posted before about the confusion over shared ownership of a leasehold flat and what value it would have under the 'willing buyer' rule. We have yet to find a RICS professional view in writing on that issue, I do have an email from an estate agent saying she would not be able to sell half a flat and would struggle to sell the flat because the lease is getting near to the 82 year cut off for mortgages. I am only partially ready for a battle should it occur, if the local authority 'over value' the flat by simply splitting it 50% based on some sort of Zoopla tool.
Since being in this nursing home MiL has developed another health problem and spent another night in A&E, a GP is going to assess this week and she may be referred to a consultant colorectal specialist. Sadly having been taken from bed by a hoist and into a wheelchair and eating in the dining room for a week or two, she is bed bound again. So looking at continuing healthcare may now be something we need to think about depending on GP view etc over the coming weeks.
We haven't applied for any sort of allowances yet, I ticked the box on financial assessment for my local authority to look into this, but noone has been in touch so I am now wading my way through the form for attendance allowance and another application to not pay council tax as the property is empty. I am unclear whether social services will apply for the nursing care allowance and whether this is instead of attendance allowance or in addition to?
In essence as well as dementia causing confusion, inability to read anymore, can't read the time on her favourite clock that we have put up in her nursing home room, usually doesn't know what day it is or time or day, sleeps more than being awake, MiL has hearing loss, lost mobility due to a mix of her broken ankle and due to dementia and loss of strength she is not expected to gain any more mobility and will likely loose it as muscle wasting continues, she cannot carry out any personal hygiene, cooking etc. she has kidney disease and a heart condition (on apixoban), she is incontinent since all her hospital stays and lack of mobility combined with dementia, and has just suffered rectal prolapse, that may become a recurring problem and this has led to her being bed bound whilst an opinion is sort from an OT and GP. She was sent home by a local hospital 8 weeks ago because they said she had capacity, but the social worker agreed within 10 minutes of meeting her that she did not have capacity. Previous to that the discharge person at that hospital has said she was looking for a nursing home, but a different OT took charge and determined that MiL wanted to go home, The OT likely believed home was a house with relatives living in it as this is what MiL believed herself at that time, it was a flat with no relatives nearby to act as carers. The care visits were poor (didn't do the 45 minutes they were tasked with, sometimes only one instead of two, leaving mouldy food in the fridge, dirty linen on the kitchen floor, didn't attempt commode daily etc.). combined with the fact that what the carers are paid to do compared with what was needed, caused issues too. I have said before at what point does anyone ask who is doing the food shopping, putting the bins out, washing soiled bedlinen, picking up post, ..... there just seems to be an assumption that someone will magically appear and do these things. In this case mostly me, it was just lucky I had resigned from my part time job and had time whilst looking at what to do next.
So we are weeks away from knowing long term plans and long term costs as well as whether this additional health problem will be sorted without the need for another hospital visit.
There will be many others up and down the country going through the same of course, but always useful to touch base here and receive views and support.