Hello to all
If it is means tested then we wont be entitled to anything. I was thinking the kind of help that would make a difference, would be things like during the school holidays being able to take the children to a play centre or some such thing, so I could spend more time with Dad. Also when emergencies happen, to be able to not worry about child care and to be able to visit consultants, attend review meeings etc There is no doubt these events are likely to happen more often as dads condition becomes even more advanced. Does anyone have experience of this kind of support being available? Also some emotional support(counselling) of some kind might be also helpful? I did have some counselling a few years ago, I had only one session and felt that it didn't provide me with the help I thought I would get. I think the circumstances were too much even for the counsellor to cope with!!
bye for now
hendy
If it is means tested then we wont be entitled to anything. I was thinking the kind of help that would make a difference, would be things like during the school holidays being able to take the children to a play centre or some such thing, so I could spend more time with Dad. Also when emergencies happen, to be able to not worry about child care and to be able to visit consultants, attend review meeings etc There is no doubt these events are likely to happen more often as dads condition becomes even more advanced. Does anyone have experience of this kind of support being available? Also some emotional support(counselling) of some kind might be also helpful? I did have some counselling a few years ago, I had only one session and felt that it didn't provide me with the help I thought I would get. I think the circumstances were too much even for the counsellor to cope with!!
bye for now
hendy