Well mum's appointment with the consultant yesterday could not have gone worse. I don' think I've ever been so annoyed - then again I say that every time. At one point I felt that blood should have been coming out of my ears.
Point 1. We get in there and she asks mum how she is and mum says fine. Dad agrees with this. She asks if there's been any changes/incidents since she last saw her and dad says no.
Well, let's see - she's become very aggressive again, she stormed into my house and threw her handbag at the guy trying to do paperwork for my conservatory, she's tried to get out of the car when it's still moving, we've found her walking home from town because she lost the car and she's locked herself out of the house
I told the consultant this and dad said "oh, I forgot about that". Who wouldn't?
Then we come to the driving - she asks mum if she thinks she's safe to drive and of course mum says yes. Dad backs her up on this and says she's perfectly safe (despite the fact that her best friend won't get in with her anymore because she nearly crashed into another car). Well, that's good enough for the consultant who says she's fine to drive and she won't inform the DVLA yet because "technically" we still don't have a diagnosis. Even once we have a diagnosis the DVLA will send us a form to fill in and as long as they're happy with those responses she can still drive and as dad will help mum fill the form in she'll be driving forever!
That was basically the end of the discussion as we go to Walton next week and she wants to see what they have to say before she does anything else.
I then told her that after doing research I believed that mum had FLD and she said it couldn't be because that has no impact on speech.
Now correct me if I'm wrong but my research so far leads me to think that this is one of the first and biggest indications of FLD.
I just can't believe it - I was so feeling so hopeful at the beginning of the week and now it's all gone to pot again.
I'm so sick of it all - I've been battling for two and a half years and I'm still getting no where - I don't even have the full support of dad who backs down as soon as mum is in the room.
I don't want to give up on it but I'm so tired of fighting and arguing and if everyone else wants to stay in denial why shouldn't I?
Point 1. We get in there and she asks mum how she is and mum says fine. Dad agrees with this. She asks if there's been any changes/incidents since she last saw her and dad says no.
Well, let's see - she's become very aggressive again, she stormed into my house and threw her handbag at the guy trying to do paperwork for my conservatory, she's tried to get out of the car when it's still moving, we've found her walking home from town because she lost the car and she's locked herself out of the house
I told the consultant this and dad said "oh, I forgot about that". Who wouldn't?
Then we come to the driving - she asks mum if she thinks she's safe to drive and of course mum says yes. Dad backs her up on this and says she's perfectly safe (despite the fact that her best friend won't get in with her anymore because she nearly crashed into another car). Well, that's good enough for the consultant who says she's fine to drive and she won't inform the DVLA yet because "technically" we still don't have a diagnosis. Even once we have a diagnosis the DVLA will send us a form to fill in and as long as they're happy with those responses she can still drive and as dad will help mum fill the form in she'll be driving forever!
That was basically the end of the discussion as we go to Walton next week and she wants to see what they have to say before she does anything else.
I then told her that after doing research I believed that mum had FLD and she said it couldn't be because that has no impact on speech.
Now correct me if I'm wrong but my research so far leads me to think that this is one of the first and biggest indications of FLD.
I just can't believe it - I was so feeling so hopeful at the beginning of the week and now it's all gone to pot again.
I'm so sick of it all - I've been battling for two and a half years and I'm still getting no where - I don't even have the full support of dad who backs down as soon as mum is in the room.
I don't want to give up on it but I'm so tired of fighting and arguing and if everyone else wants to stay in denial why shouldn't I?