1. Expert Q&A: Living well as a carer - Thurs 29 August, 3-4pm

    As a carer for a person living with dementia, the needs of the person you care for will often come before your own. You may experience a range of difficult emotions and you may not have the time to do all the things you need to do. Caring can have a big impact on both your mental and physical health, as well as your overall wellbeing.

    Angelo, our Knowledge Officer (Wellbeing) is our expert on this topic. He will be here to answer your questions on Thursday 29 August between 3-4pm.

    You can either post questions >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll answer as many as we can on the day.

  1. byrnedjp

    byrnedjp Registered User

    Mar 21, 2013
    168
    London
    My Uncle has been in poor health for 5 years now and I have been his Full Time Carer throughout - He became markedly weaker and unsteady just prior to Christmas last year - I got the GP to visit and he took Blood and Urine Tests - the results of which showed no major cause for concern - His appetite worsened mid December and the GP visited again - a brief examination and chat with my Uncle (who was lucid and responsive to all the GPs questions - nothing out of the ordinary) resulted in the GP asking me to pick up some Forms from the Surgery the following Day.

    I picked up a 2nd generation A4 Photocopy explaining that my Uncle was in "end of life" care

    No explanation from the GP - No follow up Phone Call - Nothing

    All in the week up to Christmas
     
  2. canary

    canary Registered User

    Feb 25, 2014
    9,902
    Female
    South coast
    I am so sorry byrnedjp. Doctors can sometimes be so thoughtless that it is breathtaking.

    My mum passed away a few weeks ago. She had not eaten or drunk anything for 17 days before she died, but remained lucid and recognised me right up until her last couple of days. I have a photo taken 4 days before the end, but to look at it you would not believe that she was actively dying - it shows her with her grandson, both banging teaspoons on the table and laughing!
     
  3. byrnedjp

    byrnedjp Registered User

    Mar 21, 2013
    168
    London
    #3 byrnedjp, May 10, 2017
    Last edited: May 11, 2017
    Canary

    Thank you for your reply

    Indeed it is breathtaking and not uncommon, and it heightens the isolation and lack of support as a Carer

    Like a fool I imagined "end of life" care would involve a more sympathetic and professional approach from District Nurses, Social Workers. GPs and all those involved with my Uncle and I - sadly its as poor as it has been from the start

    I am sorry to hear of your loss

    Best Wishes
     

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