44 years of age.

[MrStephenC]

Hi, I am 44 years of age. I started having issues with memory over 3 years ago. I finally had a SPECT scan January 2023 and was diagnosed with young-onset Altzhimers.

Is there anyone else like me here?
I'm worried for my children and wife. For what they have to witness, ahead.

 

[Izzy]

Welcome to the forum @MrStephenC.

Im
So sorry to read about your diagnosis. I’m sure others with young onset will share their experiences with you.

In the meantime I wondered if this would be of any help -

Living with dementia as a younger person

The issues faced by someone with young-onset dementia will be very different to those experienced by someone older. This page includes information on talking to children about a diagnosis, driving and any benefit entitlements.

www.alzheimers.org.uk

 

[Izzy]

…also these -

Coping after a young-onset dementia diagnosis

Kim's husband Rob was diagnosed with young-onset dementia at the age of just 51. Read about how they coped after diagnosis.

www.alzheimers.org.uk

Adjusting to my diagnosis of early-onset dementia - Alison's story

Since being diagnosed with early onset Alzheimer's, Alison Bolus has worked with Alzheimer's Society on our rebrand and features on many of our posters. Find out how she's adjusted to living with dementia, and read her poem about her experience.

www.alzheimers.org.uk

 

[jay6]

Hi, I am 44 years of age. I started having issues with memory over 3 years ago. I finally had a SPECT scan January 2023 and was diagnosed with young-onset Altzhimers.

Is there anyone else like me here?
I'm worried for my children and wife. For what they have to witness, ahead.

Sorry to hear that Stephen. Must be really hard for you. Hopefully you will find others here to share your experience. You won't be alone.

 

[Norrms]

Hiya, if its any consolation i was diagnosed aged 50, now aged 65 and still posting in here have faith dear friend xx

 

[jay6]

Hiya, if its any consolation i was diagnosed aged 50, now aged 65 and still posting in here have faith dear friend xx

That's the trouble with this terrible disease, it's the not knowing. No one reaches the next stage at the same time. But we can live in hope and do the best to prolong life by not giving in to it.
Glad you are doing well Norm

 

[Shelleydvr]

Hi, I am 44 years of age. I started having issues with memory over 3 years ago. I finally had a SPECT scan January 2023 and was diagnosed with young-onset Altzhimers.

Is there anyone else like me here?
I'm worried for my children and wife. For what they have to witness, ahead.

Hi there.

Yes, diagnosed about 2 years ago .. in mid-fifties.
The anxiety around what the future will hold for family, etc is a constant battle.
We all have different ways of coping with this.. The only thing that has given me any sort of relief is to try plan ahead, with family help, to create a future where it may be possible to be less burden to your family..
.. I'm still trying to get thi together.. But it is the only thing that give a little satisfcation.
I have vascular Demetia, and the progression may be different in everyone..

I'm still looking for a whatsapp or other group to share silly things that others may relate to.
... and now I'm exhausted after typing..