young-onset dementia

  1. P

    Young onset diagnosis

    Hi. My partner was diagnosed on Thursday with young onset Alzheimer’s. He’s 54, I’m 48 and we’re due to get married in a few months. He’s always such a positive person and has even put a positive spin on this saying he feels vindicated, that he can retire now and go on holidays and he keeps...
  2. D C McNeillis

    Hello. I am a spouse carer

    I am husband to a PWD who was diagnosed in Nov 2021 with Young Onset Dementai after around 5 years of being told that diagnosis was "performed by elimination". After eliminating all normal female possibilities for a person aged 45 and above, they started looking at Dementia, which took another...
  3. S

    Donepezil

    My mum has early onset dementia and has been prescribed Donepezil can anyone tell me what their opinions are of this drug and if it does really slow dementia down
  4. M

    Early onset dementia

    Hello, My dad got diagnosed recently with early onset dementia (Alzheimer’s) he’s 64, I’m 21, an only child and a Speech and Language Therapist by profession, I have worked with dementia patients through work and have a high level of knowledge on the condition, which seems to make it harder...
  5. G

    Smart Device

    Hi everyone! Im new here, my mum has had a recent diagnosis of Early Onset Alzheimers. She had a visit from her local clinic last week and the nurse suggested a smart device that would support her at home. My mum said she doesnt know what the name was but that it displays time/date and will say...
  6. C

    Young early on set alzheimers

    Hello. Hope everyone is well. My husband has just been diagnosed with young early onset Alzheimer's late last year. He started assessments for a trial in jan but the trial was pulled before he could get accepted. We start another one on 17th of the month. He want talk about it and is v...
  7. B

    Hi everyone! My name is Denise

    I am happy to have found this forum. My husband has recently been diagnosed with early onset dementia. I’m doing a lot of research on it and I came across this site and I have joined and hopefully we can all share our experiences and learn from each other.
  8. M

    Hello

    My husband has some form of early onset dementia aged 62. We are awaiting a MRI brain scan but I will be very surprised if he does not be diagnosed with BVFTD. This was discussed at the memory clinic. I have joined this forum as I am not finding it easy to cope with his anger and irritation. He...
  9. topher

    Early onset Alzheimer’s

    Hi my name is Chris. I was diagnosed with early onset Alzheimer's on Dec 1st 2023. I’m 57 years of age so coming to terms with the diagnosis and changes as the disease develops was and still is difficult to digest, it’s only in the last few weeks that I believe I’ve come to terms with my news...
  10. L

    Mother has early onset dementia

    Hi everyone Its nice to know there is a community of people who are in similar situations as us. My mother was diagnosed with early onset dementia at 61, it has been really hard for us as a family watch this awful disease rob her of the person she was, as her condition has rapidly declined...
  11. J

    Waiting and worried 😟

    My brother with early onset alzheimers has been having paranoia and psychosis symptoms getting worse over last 6 days. Have cancelled carers as not safe now, been seen at home by local GP, then mental health nurse then today nurse again with Dr from memory clinic. All agreed he needs to be...
  12. J

    Infection?

    Hi, few weeks ago brother (early onset alzheimers) was more confused, rambling on, had few accidents (wee) said about getting taxi to airport, very poor movement and co ordination and swore at carer, never been aggressive before. GP checked him over all ok but couldn't provide urine sample...
  13. F

    Care Home Worries

    Hi all, I haven't posted on here since Nov 23, I guess because I've been spending all my time trying to deal with Mum and her illness. My mum was diagnosed with early onset dementia in November 2022, and she is now 64 years old. She has rapidly declined since Christmas. Yesterday we moved her...
  14. M

    Feeling Overwhelmed

    My DH was diagnosed last year with early onset Alzheimer's. Two weeks ago he lost his job. The sadness, fear and anger I feel is literally overwhelming. I feel like I'm drowning. Any tips to help with this drowning feeling?
  15. M

    Hello

    Hi my name is Jane and my husband has dementia he was diagnosed with young onset dementia and also frontal temporal dementia In 2019. during this time his condition has deteriorated and has great trouble with communication and understanding on the whole we are coping with daily living but just...
  16. T

    New to Forum

    Hi My wife was diagnosed with young onset alzheimers dementia which took quite a while to diagnose and she's deteriorated really quickly over the last two years
  17. S

    Mum asked my Dad to marry her, how to react?

    Hi all, my parents have been married for almost 30 years, received the early onset diagnosis last November time at 61yr old and rapidly declining still. Today my Mum has asked my Dad to marry her, of course he is going along with it I find this really difficult to take in & would love some...
  18. M

    Hello

    Hi I am new to this. Am looking after my sister who has Alzheimer's with young onset. She was diagnosed 2021 she was 56. My husband died 2022 so decided to move back to Manchester to care from. OMG didn't realise how hard a d challenging it was going to be. Sometimes I wish I hadn't done it...
  19. K

    Fearful

    I joined in 2021 when I was supporting a friend with Alzheimers. She has now been in a dementia unit since November 2021 because she was endangering herself. I have P.O.A., and visit her once a week. However, my priorities have changed. My husband who is 80 and previously very active, now...
  20. F

    Support for my husband

    I was wondering whether there was anyone willing to chat to my husband. His 55 and was diagnosed with early onset Alzheimer's last October. We are struggling to connect with people who are in the same situation as there's nothing in our area, thanks Donna 😍