This week I took my husband to see the neurologist following a recent MRI scan. I was hoping we would get a firmer diagnosis than "early onset dementia probably..." when we went. Unfortunately the mild atrophy apparent on the scan was not enough to offer a diagnosis and husband will need more tests over the next few months so the whole visit was a bit of an anticlimax. My husband has (characteristically of his disease, whatever it is) decided this was all excellent news and there is nothing wrong with him; the neurologist's hunch re Huntington's disease is also going to be wrong, so nothing to worry about there...
I've been feeling exhausted since the visit to the consultant. I had really hoped we might know what we were up against and be able to plan. I'm finding it difficult to manage my husband's weird choices in diet (fish and chips daily) and apathy (constant TV) and I know he is really sick. He has no insight into his symptoms (inability to make decisions, manage money, read people's/my emotions etc etc ) and I am feeling lonely and tired...
I've had offers of help and get support from his brother and my sister in law especially, but that hasnt stopped me spending the whole day under a blanket wishing the world (except the cat) would disappear for a bit...
I've been feeling exhausted since the visit to the consultant. I had really hoped we might know what we were up against and be able to plan. I'm finding it difficult to manage my husband's weird choices in diet (fish and chips daily) and apathy (constant TV) and I know he is really sick. He has no insight into his symptoms (inability to make decisions, manage money, read people's/my emotions etc etc ) and I am feeling lonely and tired...
I've had offers of help and get support from his brother and my sister in law especially, but that hasnt stopped me spending the whole day under a blanket wishing the world (except the cat) would disappear for a bit...