I hope you dont mind me answering the question directed at feeb, but I suspect that the reason that they are thinking about Huntingtons is because the symptoms of Huntingtons are the same as FTD with ALS - just caused by a different thing. A genetic test would easily confirm/rule out Huntingtons. I hope you get some answers soon.
Thanks Canary, never thought about that, gives me much more food for thought. I agree with Feeb, although outcomes are pretty much the same a clear diagnosis can help give you some idea of what symptoms/ behaviours to expect. I know clear diagnosis is difficult at times but having your diagnosis queried ( like in our case, and Feebs) does add stress to the situation greatly!!!!