Hi all
Have not been around for a while as I haven't had the time. Not so much because of mum (although there have been plenty of sleepless nights, etc) but more so beca`use of the endless battling and badgering. Naive me thought that was all over once I got mum home. But it just goes on and on - battling for pads, battling to get a doctor out to see her, etc.
At the moment I am on the verge of tears - of frustration.
The care services got worse and worse until I put in a formal complaint and now I've had my care package cut. The reason I feel so tearful and frustrated is that no one bothered to tell me, the first I knew was when the carers came and said that they supposed I'd heard. Now I can't get hold of anyone to discuss this with, so I've learnt the hard way. It;'s better to put up with whatever service I get because if I say anything I'll lose what little I've got.
I just feel once again, that they've (nhs, ss, etc) got us everyway and we just can't win.
I've listened to all the **** on Radio 4 and I'm sorry but that's all it is. It's never going to change, it's never going to get better. Unless we all take our loved ones and dump them outside Westminster - nothing will happen - and MPs would probably just step over us and call the police to get us arrested.
Apologies for the bitterness - but I could thump someone at the moment.
love ellie
Have not been around for a while as I haven't had the time. Not so much because of mum (although there have been plenty of sleepless nights, etc) but more so beca`use of the endless battling and badgering. Naive me thought that was all over once I got mum home. But it just goes on and on - battling for pads, battling to get a doctor out to see her, etc.
At the moment I am on the verge of tears - of frustration.
The care services got worse and worse until I put in a formal complaint and now I've had my care package cut. The reason I feel so tearful and frustrated is that no one bothered to tell me, the first I knew was when the carers came and said that they supposed I'd heard. Now I can't get hold of anyone to discuss this with, so I've learnt the hard way. It;'s better to put up with whatever service I get because if I say anything I'll lose what little I've got.
I just feel once again, that they've (nhs, ss, etc) got us everyway and we just can't win.
I've listened to all the **** on Radio 4 and I'm sorry but that's all it is. It's never going to change, it's never going to get better. Unless we all take our loved ones and dump them outside Westminster - nothing will happen - and MPs would probably just step over us and call the police to get us arrested.
Apologies for the bitterness - but I could thump someone at the moment.
love ellie