Top Tips for Posting on Dementia Support Forum
We’re a peer to peer support service so we don’t allow advertising on Dementia Support Forum. Please don’t try and promote products or services here in messages, your username, or signature. Mentioning a particular item or service in response to a question is fine as long as you don’t have any connection to it.
Alternative and complementary therapies
Members of Dementia Support Forum are welcome to talk about their experiences with complementary and alternative therapies on Dementia Talking Point but please don’t make claims about their effectiveness or advocate for their use.
Also please don’t:
Members may wish to use Dementia Support Forum to highlight a dementia-related campaigning issue.
If you would like to post in relation to a campaigning issue please contact the Online Community manager by emailing DementiaSupportForum@alzheimers.org.uk to seek advice and permission to post.
Once such requests have been approved, posts should be made in the Dementia-related news and campaigns forum.
Dementia can affect anyone so we welcome children who want to talk about dementia on Dementia Support Forum. However we also recommend that parents be aware of how their child is using the internet. We generally advise the following:
http://wisekids.org.uk/wk/parents-online-guide/ is a helpful guide for parents on using the internet with your children.
Members are welcome to post their original images and written works on Dementia Support Forum, for example, a poem. For work that isn’t your own you’ll need permission of the copyright holder, usually the author, to post them. With poems and other written works copyright expires 75 years after the author’s death. If you’d like to post something that is still in copyright, fair use allows you to post a short excerpt from it, you can also link to a page that has permission to host the work.
Donating / selling items on Dementia Support Forum
For health and safety reasons, we don’t allow members to advertise items on Dementia Support Forum, whether for sale or donation. This includes offers of second-hand equipment.
If you’re interested in fundraising for the Society by auctioning items on Dementia Support Forum, please contact us by emailing DementiaSupportForum@alzheimers.org.uk for advice before posting.
If you’d like to fundraise for the Alzheimer’s Society on Dementia Support Forum, that’s great. Just make sure you post in the Fundraising for Alzheimer's Society forum.
Also we encourage you to use the JustGiving website, www.justgiving.com/alzheimerssoc/ to raise funds online so supporters can be assured that their money is going to help Alzheimer’s Society in the UK.
If you wish to fundraise for a charity other than Alzheimer’s Society please contact the staff team at DementiaSupportForum@alzheimers.org.uk.
Please don’t post personal fundraising and other crowdfunding campaigns as these will be removed.
Please don’t create multiple accounts on Dementia Support Forum or pretend to be another member. We may remove any content, delete accounts and ban members who do this.
Journalists and media
If you’re a journalist or writer researching an article, book or media story please contact Alzheimer's Society's press office at: firstname.lastname@example.org.
The media should not contact members of Dementia Support Forum directly. If you receive a direct personal contact from anyone in the media, please report the conversation (PM) or contact us at DementiaSupportForum@alzheimers.org.uk.
Keeping it legal
Alzheimer’s Society has a responsibility to ensure that what’s posted on Dementia Support Forum doesn’t break the law. We want to protect you and the Society from any risk caused by posting something libellous.
Therefore you’re not allowed to post anything which might lower or damage the reputation of an identified person or organisation on Dementia Talking Point.
Even if you don’t name the individual or organisation explicitly, please bear in mind that other details you post may identify them. While your comments may or may not be true, we are not in a position to verify the facts and therefore we will always err on the side of caution.
Negative comments about an individual or organisation that could be interpreted as being libellous will be edited or removed by the moderation team.
Naming of individuals and organisations
To help with the above advice on libel we ask that when you’re posting please don’t identity people by name, such as health and social care professionals.
Likewise don’t identify or name specific hospitals, local authorities, legal providers, insurance companies, health or social care services or organisations.
However you can name companies and charities if it’s a passing reference from personal experience. For example, it is fine to say “I popped into town and bought a lovely skirt from Marks & Spencer” or “the staff at my local memory clinic were brilliant today”.
Also please avoid making generalisations about companies, organisations or professions. For example, saying “My social worker doesn’t seem to understand my situation” is fine but “Social workers don’t know what they are doing” is not. This way you have the opportunity to express your feelings about your personal situation, while making it clear that it does not apply to every situation or circumstance.
Maintaining other people's privacy
Please, where possible, seek permission before posting personal information about, or photographs of, other people on Dementia Talking Point.
Contact details and personal information
We don’t permit our members to publicly share contact details on the forums (address, telephone number, email address, etc). Identity information can be communicated using the Conversation (PM) system, but we don’t recommend this.
Please don’t post messages encouraging others to disclose contact details about themselves. When such details appear, they will be removed by the Dementia Talking Point team.
Also please do not post messages with the sole intent of urging others to post personal information (e.g. images, stories) on other websites which may not have the same safeguards as Dementia Talking Point.
Researchers and Students
Students and researchers can post in the “Researchers, students and professionals” forum asking for general information about dementia, or to canvass for opinions without needing prior approval. But:
If you wish to conduct research forum using Dementia Support Forum data, cite content posted by users, or ask users to contribute to surveys or studies, please contact the Online Community Manager for approval before posting by emailing DementiaSupportForum@alzheimers.org.uk.
Research projects will need to provide confirmation that they've received ethics consent from the National Research Ethics Service (NRES).
Due to the number of requests we receive of this nature, we are unable to support researchers and students at or below Masters level.
Support and Safeguarding
Dementia Support Forum is a peer to peer support service so if you see someone who is having a difficult time, don’t be afraid to post a supportive message pointing them to our Helpline, the Samaritans or SANEline who all provide emotional support and information.
If you’re worried about another member of Dementia Support Forum please report their post or get in touch with us at DementiaSupportForum@alzheimers.org.uk. Our volunteers can then take steps to make sure they get the support they need.
If we have reason to believe that you or someone else is at risk of serious harm or abuse the staff team reserve the right to review any relevant conversations (PMs).
We treat any information we hold about you as confidential unless there is a risk of serious harm or abuse to you or someone else. In this instance, we will have a duty of care to act in the best interests of the person at risk of harm and may pass this information onto a third party such as the emergency services or social services.
Guidelines: Last updated May 2018