Hello all. I have at last figured out how to start a new thread, rather than just adding to an old one!
Dad has really deteriorated since the lockdown, and I can’t decide if it’s coincidence or what. He’s also 5 weeks into a home treatment plan with the mc, which at first seemed all very positive, but now it seems like it’s not achieving anything apart from confusion about the number of people crowding the house. He seems to hear the things they say, then churns them up and twists them, then reports them as fact. An example of this is when they last came they explained how they’re there to help him live well at home etc. After they had gone and he began sundowning he told us they wanted him to leave because the house is too big for him and that they told him the sofas don’t belong to him.
This confusion (and rage) is now a daily occurrence, and last night was especially challenging. His medication didn’t calm him, instead it seemed to fuel him, as he charged around the house packing up all of his newspapers in bags and loading them into his old van. This episode continued for hours until eventually he gradually emerged through the fog around 9pm. My uncle (by marriage, and old school friend) came over and sat with him and listened patiently to his confused ramblings, while my mum sat in the other room utterly bemused and desperate.
We are at a loss. The GP has ruled out a UTI and no tablet review has been discussed. We are bounced between the mc and the gp with our queries, and nothing seems to move on without us having to chase. It’s exhausting and we don’t know what to do.
No amount of compassionate communication seems to work when he’s in his phases, so every day is a desperate race to the end where sleep is the only respite.
Dad has really deteriorated since the lockdown, and I can’t decide if it’s coincidence or what. He’s also 5 weeks into a home treatment plan with the mc, which at first seemed all very positive, but now it seems like it’s not achieving anything apart from confusion about the number of people crowding the house. He seems to hear the things they say, then churns them up and twists them, then reports them as fact. An example of this is when they last came they explained how they’re there to help him live well at home etc. After they had gone and he began sundowning he told us they wanted him to leave because the house is too big for him and that they told him the sofas don’t belong to him.
This confusion (and rage) is now a daily occurrence, and last night was especially challenging. His medication didn’t calm him, instead it seemed to fuel him, as he charged around the house packing up all of his newspapers in bags and loading them into his old van. This episode continued for hours until eventually he gradually emerged through the fog around 9pm. My uncle (by marriage, and old school friend) came over and sat with him and listened patiently to his confused ramblings, while my mum sat in the other room utterly bemused and desperate.
We are at a loss. The GP has ruled out a UTI and no tablet review has been discussed. We are bounced between the mc and the gp with our queries, and nothing seems to move on without us having to chase. It’s exhausting and we don’t know what to do.
No amount of compassionate communication seems to work when he’s in his phases, so every day is a desperate race to the end where sleep is the only respite.