well, here we are, never thought I would be careing for my mom and struggling with just about every aspect, till you master them being the first time...
Broken hip caused huge dive in dementia and put early onset, well into mid term, but then you don’t know for sure. The more you read (and I think I have read everything!) the more you realise no one actually knows a thing. They talk about stages and signs but then say you could have some or all or none at any point, they talk about how long they will live and guide, then say it could be anything from 2-15 years.
But none ever tells you just how tough it is as a career trying to do your absolute best every single moment for this wonderful person who is your mom. They don’t tell you that your going to have to defend your actions and justify yourself to an aloof brother who neither knows or cares and simply wants to stick her in a home. You want to punch them in the face and say, she is in a home, the best home she could have, mine. The one where she is loved 24/7, not farmed out to a profit making organisation. .....this is difficult enough without having those battles, but I understand it’s very common.
Broken hip caused huge dive in dementia and put early onset, well into mid term, but then you don’t know for sure. The more you read (and I think I have read everything!) the more you realise no one actually knows a thing. They talk about stages and signs but then say you could have some or all or none at any point, they talk about how long they will live and guide, then say it could be anything from 2-15 years.
But none ever tells you just how tough it is as a career trying to do your absolute best every single moment for this wonderful person who is your mom. They don’t tell you that your going to have to defend your actions and justify yourself to an aloof brother who neither knows or cares and simply wants to stick her in a home. You want to punch them in the face and say, she is in a home, the best home she could have, mine. The one where she is loved 24/7, not farmed out to a profit making organisation. .....this is difficult enough without having those battles, but I understand it’s very common.