I`m another who`s lost motivation. Nothing seems as important now.
I suppose when caring and later when visiting we needed a routine. Now it doesn`t matter as much, there`s always tomorrow.
I don't want to give up on him but I hate this kind of 'care'. How do others cope with it. I would welcome advice. He will not let me help him. I feel so sad. So miserable. My lovely man. What has this b****y awful illness done to him. When we were young we used to say I don't want to live if I ?? And so it goes on.xx
We think we`re prepared for everything but we aren`t and it`s very upsetting when we`re out of our depth.
I could manage everything I had to do but so much of it was done with tears in my eyes.
We think we`re prepared for everything but we aren`t and it`s very upsetting when we`re out of our depth.
I could manage everything I had to do but so much of it was done with tears in my eyes.
Ok this is different. Tonight I tried to record the programmes we like. In case I get a phone call or dinner is late. No TV.!!!! We have 3 t.v's and they all said 'no signal' or similar. A couple of phone calls and it would seem the most likely cause was the arial or ariel lead. So here I am faffing about on here. I cannot believe I am missing Broadchurch or to be more precise David Tennant. Woe is me. Didn't realise how much I love my soaps and serials. David has been horrible since lunch time. Switching on and off like traffic lights. After a whole week of almost dementia bliss he has not had a good day. Two things : one the clocks being changed? the other, another tablet for his seizures.? Maybe thats' why his quiet mood has changed. Who knows. Meanwhile I am missing Broadchurch. And it would appear can't spell ariel or arial. So what don't care. xxx
Sorry that you are all feeling so ' can.t be bothered.' Maybe the sunshine and spring will sort us all out. In my case I am devastated. My social worker rang me this a.m. about the assessment 2 weeks ago with a view of what kind of care was needed for David if and when he goes into care. Although I couldn't get him out of bed I felt quite confident that there was no hurry to get him into a care home with 24 hour nursing. Then this afternoon he had an 'accident' and it was really bad and he wouldn't let me clean him . I suddenly realised that I was not coping very well at all.Long story short I have put him to bed (as clean as he would let me) and I started to cry like a baby. I don't want to give up on him but I hate this kind of 'care'. How do others cope with it. I would welcome advice. He will not let me help him. I feel so sad. So miserable. My lovely man. What has this b****y awful illness done to him. When we were young we used to say I don't want to live if I ?? And so it goes on.xx
Wish I could say something to help. Nothing I'm afraid. Have you spoken to SW about a male carer coming in to help you. Hubby might have a different attitude towards another man.
I know, before the 'D', when we saw anything about it. Stan would say, if I ever get like that 'shoot me', little did we know. Our OH's would be appalled at the things we have to do to care for them, but, we love them, and we do it no matter how hard. Sadly there will be a time for CH, but, it's a day at a time for me, I can't look that far forward. Hope you find some way to make things easier for yourself and hubby soon. Hugs M xxx
It was the clinical atmosphere and uniforms on staff that did it.
Many homes and medical staff/therapists are leaning towards informality and no uniforms . For many people with dementia and even the elderly infirm, a uniform tells them who these people are. Even visitors are helped by uniforms identifying who is staff and who are family and friends.
I have never understood why uniforms are frowned on by some.
Before we went out today I wrote quite a bit but it wouldn't post. Don't know why. Anyway now I am home and I was told the token had run out. I didn't know there was a time limit. So I couldn't post what I had written. So this is a short version of what I said before. We tried a care package but it didn't work as David would not let anyone help him. We tried for 11 days and in the end I gave up. He has a male sitter on Fridays but that is just to let me go out. On the subject of going out we have!!!! Today we went to an afternoon birthday tea. First I couldn't even get him off of the settee. then when we got
there he was refusing to even look at anyone or say hello. After a while he sat down and I gave him a plate of buffet food and he started to relax. He wandered into the gardens (It was a listed house 12 bedrooms and beautiful grounds with a pond and swimming pool. Also there was a puppy 6 months old that would run and fetch a ball as often as you could throw it. Then one of the children a little girl sat next to him in the garden and chatted to him. And he spoke back In his muddled language this 3 year old answered him and offered him her bag with toys in it. We were there two and a half hours and I asked him if he was enjoying himself and he said yes. He had a walk with my brother in law and then another with my sister. Cannot believe the change in him. It was so nice to go somewhere. I hope you all had a nice day as well.xx