Final straw

SeaSwallow

Volunteer Moderator
Oct 28, 2019
6,762
0
@Louj3 I am so pleased that you have received good advice and support. As you say your mum will be moved in 36 hours but this whole awful situation should not have happened and it will take you a while to recover from this awful experience. Take care and let us know how you get on over the next few days.
 

GillP

Registered User
Aug 11, 2021
3,931
0
@Louj3 , I am so sorry to read what you are and your Mum and brother are going through. Wishing you strength as you come to terms with it all. You have done right to seek advice. Do you have someone you can offload to?Hoping things improve.

Thinking of you all.
 

Louj3

Registered User
Apr 1, 2023
29
0
I am genuinely lifted by everyone’s messages of support. Thank you. I hadn’t realised how common it is for specialist dementia units to decide they cannot meet fairly standard dementia needs. I was so taken aback by how cross they were with mum. Hope I’m not pinning too much on this second home we are going to tomorrow.
My brother is stable and talking but has no left side movement and the added complication of pneumonia but is receiving good care.
Let’s hope the dementia care team are able to calm the situation this morning………..
 

Louj3

Registered User
Apr 1, 2023
29
0
Apparently mum was delightful when the dementia support nurse went to see her yesterday - and also pretty in tune with what was happening. She told her that she was trying to get kicked out because it was so awful there 😳 I genuinely hope that’s not true or we might be really struggling to get her anywhere.
I think that’s pretty typical of mum in that sometime she’s fully across what’s happening - or if not fully then really quite good and on other days she’s all over the place.
I’m going to pick her up and take her to the new home today so hopefully that will be a bit better. Fingers crossed
 

Banjomansmate

Registered User
Jan 13, 2019
5,669
0
Dorset
Apparently mum was delightful when the dementia support nurse went to see her yesterday - and also pretty in tune with what was happening. She told her that she was trying to get kicked out because it was so awful there 😳 I genuinely hope that’s not true or we might be really struggling to get her anywhere.
I think that’s pretty typical of mum in that sometime she’s fully across what’s happening - or if not fully then really quite good and on other days she’s all over the place.
I’m going to pick her up and take her to the new home today so hopefully that will be a bit better. Fingers crossed
Hostess mode coming into play there?
 

Louj3

Registered User
Apr 1, 2023
29
0
So far so good. I really like the new home who seem much more solution focused and caring. They talk about their residents as people living with dementia not dementia patients. It is spacious and bright and full of smiles and laughter. They have gone out of their way to settle mum in and she has done more in 24 hours than she did in 10 days in the other place. She particularly enjoyed the visit by local nursery children. They have been in touch to say things are going well and so far mum has been very engaged with them. I’m sure there will be bumps when she decides she wants to leave but I have a bit more faith they will deal with it. Fingers crossed 😬
 

Sarasa

Volunteer Host
Apr 13, 2018
7,433
0
Nottinghamshire
That is good to hear. I’m really glad your mum is engaging with what’s on. I chose mums first care home because of the amazing stuff they did, but it was hard work getting mum to settle in and enjoy it all,
 

Jale

Registered User
Jul 9, 2018
1,183
0
Hi @Louj3, just caught up with your events. Fingers crossed for you and your Mum, glad that your Mum is engaging with people in the home,
 

ShivyDevon

Registered User
Oct 11, 2022
64
0
I'm so glad it's going well so far. Hopefully this is the starts of a bit more of a settled chapter. Take care
 

Shelly3

Registered User
Jan 4, 2024
12
0
Hi everyone I started a couple of previous threads about my mum who had delirium last Christmas and since has had a diagnosis of vascular dementia. I’ve got a bit of an update. It’s been really tough trying to support her as she is fiercely independent, will not accept she needs help and is rude to or hides from carers. She lives in a retirement complex and other residents have been increasingly vocal about her behaviour and not at all subtle in canvassing for her to leave. I can’t say I blame them but it’s added pressure.
Anyway I was called there today as she had caused a significant fire. The fire brigade attended and declared her flat uninhabitable. The smoke damage is extensive and mum can’t have any of her clothing or other possessions without a deep clean. She could have died. The fire officer was really clear about how bad it was and how toxic the smoke was. I have spent the afternoon washing and drying clothes for her but she doesn’t really get why.
I’ve managed to get her emergency care in a nice local care home and she is agreeing to go. Frankly there is no choice as she clearly cannot return to her flat and there is nowhere else. She thinks it’s just until after the repairs and clean up are done but I suspect this will be permanent.
It’s so sad. This is not how I wanted this to happen and it’s all such a mess. Mum is feeling confused and embarrassed but also doesn’t understand why she can’t go home and sleep in her own bed. So residential care it is. I just feel guilty and sad and not sure if I should have tried to move her sooner or done more to keep her safe. She still feels really capable in many ways although obviously isn’t at all. I think she will hate the home. But there really isn’t another option.
So sorry you had to endure this episode. I don't know what else to say. But good for you for reaching out. It's a tough position such as ourselves. The many phases of feelings that we feel we are NOT supposed to feel from anger, irritation, hopelessness, guilt, lonely.....I could go on. But I felt a little better when I found this forum. I do not go on as much anymore because there is just too much to do as far as caring for my loved one, sorting out their finances, trying to salvage my own affairs, forget about relationships!
 

Louj3

Registered User
Apr 1, 2023
29
0
Hoping this will be my final post because things are going SO well. Mum is relaxed, happy and well cared for. She at last seems to have accepted her restricted freedom and is engaging with staff and other residents. Her dementia does seem much more advanced and it is impossible really to think only a couple of months ago she was living independently but I am so impressed with the quality of care she is receiving. It’s a shame she had to move 100 miles to get it but it’s worth it to find the right place. They do exist. Thank you to everyone on this forum for the wisdom, suppose and kindness.
 

DeeCee7

Registered User
Oct 13, 2023
338
0
Hello @Louj3 I am delighted to hear your good news. For many people, posts tail off as their lives move on, quite understandably , so it’s really nice to hear how things turn out. I am so pleased your Mum is settled, happy and now accepting her restricted freedom. I hope this gives hope and comfort to those who are contemplating moving their loved ones into care, or are in the actual process.. It works, and often - very well.
Here’s to a calmer and happier next stage of your own life.
 

Kevinl

Registered User
Aug 24, 2013
7,103
0
Salford
I'm glad it's all worked out for you, finally.
So have a little time for yourself, the rest of your family and maybe a glass of wine, you've earned it.
Thank you...that simple, for all you've done. K
 

Angel55

Registered User
Oct 23, 2023
205
0
Hoping this will be my final post because things are going SO well. Mum is relaxed, happy and well cared for. She at last seems to have accepted her restricted freedom and is engaging with staff and other residents. Her dementia does seem much more advanced and it is impossible really to think only a couple of months ago she was living independently but I am so impressed with the quality of care she is receiving. It’s a shame she had to move 100 miles to get it but it’s worth it to find the right place. They do exist. Thank you to everyone on this forum for the wisdom, suppose and kindness.
💗 In the times that might come where things are not so good keep this post to remind yourself that things are good, can be good sometimes, can be good all of the time and sometimes not so good. Sending you best wishes 💗
 

leny connery

Registered User
Nov 13, 2022
491
0
Hi everyone I started a couple of previous threads about my mum who had delirium last Christmas and since has had a diagnosis of vascular dementia. I’ve got a bit of an update. It’s been really tough trying to support her as she is fiercely independent, will not accept she needs help and is rude to or hides from carers. She lives in a retirement complex and other residents have been increasingly vocal about her behaviour and not at all subtle in canvassing for her to leave. I can’t say I blame them but it’s added pressure.
Anyway I was called there today as she had caused a significant fire. The fire brigade attended and declared her flat uninhabitable. The smoke damage is extensive and mum can’t have any of her clothing or other possessions without a deep clean. She could have died. The fire officer was really clear about how bad it was and how toxic the smoke was. I have spent the afternoon washing and drying clothes for her but she doesn’t really get why.
I’ve managed to get her emergency care in a nice local care home and she is agreeing to go. Frankly there is no choice as she clearly cannot return to her flat and there is nowhere else. She thinks it’s just until after the repairs and clean up are done but I suspect this will be permanent.
It’s so sad. This is not how I wanted this to happen and it’s all such a mess. Mum is feeling confused and embarrassed but also doesn’t understand why she can’t go home and sleep in her own bed. So residential care it is. I just feel guilty and sad and not sure if I should have tried to move her sooner or done more to keep her safe. She still feels really capable in many ways although obviously isn’t at all. I think she will hate the home. But there really isn’t another option.
ah, so sorry for you and mum. Still , should have, could have are words which is not useful on hindsight. Do not feel too bad or guilty. You are not dealing with an inanimate object, but a person with a will of her own, Unfortunately, it does sound the end of the road for her to live alone. Residential care home is (all of our) last choice. When there really is no other alternative. She sounds a wilful , independent person so of course she will fight, but you must think what is best for her and for people around her. Good luck, you are doing the best in a very difficult situation. Lots of love