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  1. Thanks for Help!!!

    Quote Originally Posted by Grey Lad View Post
    This thread had been just what I needed this morning as so much of it happens here. It is really hard trying to deal with the events of the day but when you add the denial factor it becomes rather challenging. The suggestion of assessment has clarified what is needed. I am considering writing our own needs assessment as a sort of bottom line to ensure my sanity and my wife's safety. Yet even this seems conservative and accepts the 'watching and waiting' model that is such a gloomy outlook on
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  2. Contagious Caring

    Quote Originally Posted by Grey Lad View Post
    Media attention in the last few days has been on carers not being paid travelling time. We learned from personal experience today that they also do not get sick pay from their Agency. Girl Wednesday turned up today with a chest infection and implied that she could not afford to stay off work. Enquiries at the Agency revealed two things: firstly, they were unaware that Steph was under the weather; secondly they did not think a chest infection was contagious. Google suggested that chest infections
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  3. Keep On Running?

    Quote Originally Posted by Grey Lad View Post
    Can't remember who the song was by - Yes I can it's Spencer Davis. Think I saw them once at the Cavern in Margate as a 17 year old. Oh happy days and I had a holiday romance but enough of this ...

    Running caused me a problem wore my hips out. Both replaced now so that's sorted. I agree we need an AMBASSADOR to stop us running ourselves into the ground. Jack Jones was a good man as was Hugh Scanlon when he was leader of the AUEW. I was one of his Shop Stewards when I worked
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  4. Forever the Optimist

    Quote Originally Posted by Grey Lad View Post
    I have no intention of losing my optimism malc. What would be the point? I love my wife and it's 'until death us do part'. However, if I am to be the best carer I can possibly be there are a host of things that need to be in place. Optimism is one of them and that is my responsibility, but others need to 'up their game'.

    Firstly, I am not prepared to accept that we just watch and wait as the condition progresses. That approach has never been in my DNA. Secondly, I need decent
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  5. Even A Bill of Rights ?

    Quote Originally Posted by Grey Lad View Post
    The Union idea is perhaps a play on words on my behalf. However, I feel carers are exploited by lots of people. Yes I want to care for my wife. But what about me? Surely I have a right to some quality in my life and not be expected to forget my own wants and needs.

    Perhaps carers would be more comfortable with a Bill of Rights!
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