Hi. I'm not sure if this is the right place to post my latest dilemma, but as I've just started my appeal journey and it's an ICB issue, this thread seems to be the most appropriate at the moment.
I'm truly at my wit's end with the dark and magical web of intrigue which my ICB and mum's care home seem to be constantly weaving. I'll try and be succinct.
Mum has been in her nursing home since being discharged from hospital in April '21. She's had a couple of CHC Assessments and has been found to be ineligible for CHC on both occasions, but was awarded Funded Nursing Care. The last CHC Assessment was on 12.01.23 and FNC was agreed. However, 3 weeks later on 31.01.23, the Nurse Assessor who had co-ordinated the MDT contacted me to say that she had been asked to review mum's FNC the following day and that I was welcome to attend. When I asked her why mum's FNC was being reviewed just 3 weeks after she had been found to be eligible, she was unable to give a reason. I did attend the review the next day, and, having looked at all of the domains again, the assessor announced that mum did not have 24 hour nursing needs. Still, no reason was given for this latest review, despite my asking (the assessor just said that she had been asked to do it).
It wasn't until a couple of weeks later, when the nursing home informed me that they were de-registering as a 'nursing home', that I understood why the review had taken place. The 'care home' (as it is now), have informed me that because mum has been risk assessed as not having 24 hour nursing needs, she can stay where she is. (The MDT scored mum with 1 severe, 6 highs, 3 moderates and 2 no needs on the DST a couple of months ago).
Today, during a conversation with a representative from the legal company I have appointed to help me with my appeal for CHC, I was advised that mum does indeed have quite complex nursing needs, and that I should consider moving her into a nursing home. However, as I understand it, the 'setting' should not be relevant for CHC and I don't think that the advice was given with a view to strengthening my case for appeal, but more of a concern for mum's needs.
Following this conversation, I contacted my ICB and asked that if I were to move mum into a nursing home, would the FNC, which was awarded on 12.01.23, be restored? The reply was that mum would have to have her nursing needs reassessed - that will make it the 3rd time in 3 months and, it seems, with no guarantee that FNC would be awarded. Clearly, this has nothing to do with mum's nursing needs, and everything to do with the ICB saving loads of money. The ICB are pulling all of the strings (as they do) at the moment and I feel utterly helpless.
I'm sorry for rambling on, but I just needed to put this latest set of circumstances 'out there'. There seems to be a never ending and far reaching stretch of obstacles placed in my way by the ICB.
Any thoughts, comments, ideas would be much appreciated. Thanks.