“You are all amazing people”
Not all of us are! I’m afraid I’m not! I struggle, I’m angry and bitter. I am this way because I see a profound ignorance of dementia outside this forum, and no worth-while attempt being made to improve the situation. It’s always too little too late, if it arrives at all. Band-aids on gaping wounds. See how the NHS treats people with dementia. If the professionals can’t get it right, what hope is there?
If the general public think of dementia at all, they tend to the view that it’s a rather loveable kind of forgetfulness. Unfortunately, I know this from personal experience. That is exactly what i thought before my wife succumbed. No-one in the medical sphere offered any explanations, help or advice at all. I was left to get on with it. Only the knowledge I acquired here on TP. saved my wife from my dangerous ministrations based on complete and utter ignorance. That situation hasn’t changed, there’s still no professional help offered.
I am more than grateful for those TP. members who really are amazing and saved me from falling into the abyss.
I’m afraid I use TP. mainly as an escape valve when the anger and bitterness get too much, as this post demonstrates.
