.... and advice on my ‘battle plan’ appreciated….
Rather than ‘resurrect’ my original thread, here’s the link for anyone not aware and interested in reading the background….http://www.alzheimers.org.uk/TalkingPoint/discuss/showthread.php?t=4115&highlight=cancer
Today another letter….. (why are we getting letters about stuff I think warrant a consultation when we are offered ‘all clear’ consultations which necessitate huge effort, inconvenience and struggle on mum’s part to attend which warrant no more than a letter?)
‘They’ (those brilliant medics) plan to do nothing, basically….. Their proposal - another scan next February …. See if there‘s any further ‘growth‘ - three scans in six months then six months ‘til a follow-up??? What’s going on? Alarm bells have been rung. Why are they suddenly silenced????
If we (mum and I) want to go to the arranged appointment on 2nd October we can ….. WHAT FOR??? Otherwise it is for ‘Mrs X’s daughter to ring my secretary to arrange a further appointment in February once the scan date is know.”….
So, my current thinking is *I* will attend the scheduled appointment on 2nd October WITHOUT mum and without asking this particular consultant to divulge anything confidential about mum’s health I am not already acutely aware of myself (or indeed haven’t been the one to inform him), I shall ask all the hypothetical questions about why , since I alerted HIM to mum’s ‘memory problems’, her scan results seem to have been analysed from a different viewpoint…
I’m prepared to ‘give up’ in terms of admitting I’m the idiot refusing to recognise I’m not going to have mum forever ….. but I REFUSE to give up on giving her the best quality of life she can have as long as we have it …. but for that I want to understand better ALL her problems and what help I need to deal with them…..
Why do I have just have this feeling… nothing else matters to the (non-mental-health) medics now dementia has set in???
Sorry, rant over. Thanks for listening...
Karen, x
Rather than ‘resurrect’ my original thread, here’s the link for anyone not aware and interested in reading the background….http://www.alzheimers.org.uk/TalkingPoint/discuss/showthread.php?t=4115&highlight=cancer
Today another letter….. (why are we getting letters about stuff I think warrant a consultation when we are offered ‘all clear’ consultations which necessitate huge effort, inconvenience and struggle on mum’s part to attend which warrant no more than a letter?)
‘They’ (those brilliant medics) plan to do nothing, basically….. Their proposal - another scan next February …. See if there‘s any further ‘growth‘ - three scans in six months then six months ‘til a follow-up??? What’s going on? Alarm bells have been rung. Why are they suddenly silenced????
If we (mum and I) want to go to the arranged appointment on 2nd October we can ….. WHAT FOR??? Otherwise it is for ‘Mrs X’s daughter to ring my secretary to arrange a further appointment in February once the scan date is know.”….
So, my current thinking is *I* will attend the scheduled appointment on 2nd October WITHOUT mum and without asking this particular consultant to divulge anything confidential about mum’s health I am not already acutely aware of myself (or indeed haven’t been the one to inform him), I shall ask all the hypothetical questions about why , since I alerted HIM to mum’s ‘memory problems’, her scan results seem to have been analysed from a different viewpoint…
I’m prepared to ‘give up’ in terms of admitting I’m the idiot refusing to recognise I’m not going to have mum forever ….. but I REFUSE to give up on giving her the best quality of life she can have as long as we have it …. but for that I want to understand better ALL her problems and what help I need to deal with them…..
Why do I have just have this feeling… nothing else matters to the (non-mental-health) medics now dementia has set in???
Sorry, rant over. Thanks for listening...
Karen, x