Hi folks long time no post. I’m puzzled & could do with some feedback/ advice
Mum is now down to 7 stone ( from 12) & rapidly losing weight. Needs assistance drinking /feeding, doubly incontinent, not weight baring ,confused, agitated at night & sleepy during day , meds often need to be placed in mouth & atm in hospital awaiting a D2A bed after fall at home. I questioned the social care package in place 4 visits a day as not being adequate, social services say it is. We have typed up carers diary , got SWAST statements etc documenting aggression & all the above issues & are appealing CHC assessment.
Today got through to the ward & Mums not eating a teaspoon of hot chocolate this morning & been asleep since. Cant talk on a phone & hasn’t been able to for months, hospital has no visitor policy unless exceptional circumstances. Was informed to contact Mums social worker for updates… we have Health & Welfare LPA!(& finance)
Honestly I believe Mums at end stage dementia & is at end of life but the hospital say no, she’s not days from death. Covid being used for months as an excuse to not provide more a more complete social care package. Cant even get a hospital bed for Mum at home so the risk of aspirational pneumonia high as she can’t always sit up or stay sitting up.
Have contacted PALS, GP, Social Services, Complex Care & Dementia Team requesting help & assessments as 4 carers a day in mums home isn’t enough, Mum lives 125 miles away from us & now doesn’t have the capacity to make decisions. Social services say it’s in her best interests to remain at home , we disagree with the current package of care in place.
We have had to fight for every bit of help & provide evidence for years not making us popular, but now it’s become ridiculous ..
I am relieved Mums in hospital even though a fortnight ago she was taken in for head CT - (so aggressive that it was never done) it means she’s got 24/7 care atm.
I truly don’t think a D2A bed is appropriate & the Complex Care team haven’t assessed her since she’s been in hospital , 2 ward moves & now in a community hospital none of which we where informed of!
I just want my Mum to be given some dignity at her end of life, & not be a case number
It’s heartbreaking , I can’t look after her I’m disabled myself & my husband & daughter care for me. Having the same Council & care system fail my Dad it’s now doing the same with Mum. Social services say we are not allowing discharge so we sent documentation to the ward Mums on.
Mums not covid vaccinated as the GP tried to at home in January without notifying us - she freaked!
Honestly I’m exhausted by the fact that it seems & has been stated that the rule book no longer applies due to covid!
Cant believe that now she needs the 24/7 care package it’s being argued over despite all of the evidence.
Mum lives in Cornwall & hospital beds are being freed up for holidaymakers as no GP services & only one major hospital/ A&E unit in
Cornwall.
The usual community hospital beds available for rehabilitation & assessment are now put out to private care homes via D2A beds brought in by government to free up beds during Covid crisis.
Mum is in hospital gown & as we can’t visit & take away soiled clothing will remain so as no laundry facilities available to wash personal items.
seriously shocking situation considering the circumstances & Mums lack of capacity & ability to communicate.
anyone else experiencing this?
Mum is now down to 7 stone ( from 12) & rapidly losing weight. Needs assistance drinking /feeding, doubly incontinent, not weight baring ,confused, agitated at night & sleepy during day , meds often need to be placed in mouth & atm in hospital awaiting a D2A bed after fall at home. I questioned the social care package in place 4 visits a day as not being adequate, social services say it is. We have typed up carers diary , got SWAST statements etc documenting aggression & all the above issues & are appealing CHC assessment.
Today got through to the ward & Mums not eating a teaspoon of hot chocolate this morning & been asleep since. Cant talk on a phone & hasn’t been able to for months, hospital has no visitor policy unless exceptional circumstances. Was informed to contact Mums social worker for updates… we have Health & Welfare LPA!(& finance)
Honestly I believe Mums at end stage dementia & is at end of life but the hospital say no, she’s not days from death. Covid being used for months as an excuse to not provide more a more complete social care package. Cant even get a hospital bed for Mum at home so the risk of aspirational pneumonia high as she can’t always sit up or stay sitting up.
Have contacted PALS, GP, Social Services, Complex Care & Dementia Team requesting help & assessments as 4 carers a day in mums home isn’t enough, Mum lives 125 miles away from us & now doesn’t have the capacity to make decisions. Social services say it’s in her best interests to remain at home , we disagree with the current package of care in place.
We have had to fight for every bit of help & provide evidence for years not making us popular, but now it’s become ridiculous ..
I am relieved Mums in hospital even though a fortnight ago she was taken in for head CT - (so aggressive that it was never done) it means she’s got 24/7 care atm.
I truly don’t think a D2A bed is appropriate & the Complex Care team haven’t assessed her since she’s been in hospital , 2 ward moves & now in a community hospital none of which we where informed of!
I just want my Mum to be given some dignity at her end of life, & not be a case number
It’s heartbreaking , I can’t look after her I’m disabled myself & my husband & daughter care for me. Having the same Council & care system fail my Dad it’s now doing the same with Mum. Social services say we are not allowing discharge so we sent documentation to the ward Mums on.
Mums not covid vaccinated as the GP tried to at home in January without notifying us - she freaked!
Honestly I’m exhausted by the fact that it seems & has been stated that the rule book no longer applies due to covid!
Cant believe that now she needs the 24/7 care package it’s being argued over despite all of the evidence.
Mum lives in Cornwall & hospital beds are being freed up for holidaymakers as no GP services & only one major hospital/ A&E unit in
Cornwall.
The usual community hospital beds available for rehabilitation & assessment are now put out to private care homes via D2A beds brought in by government to free up beds during Covid crisis.
Mum is in hospital gown & as we can’t visit & take away soiled clothing will remain so as no laundry facilities available to wash personal items.
seriously shocking situation considering the circumstances & Mums lack of capacity & ability to communicate.
anyone else experiencing this?