Hi Tina
As a person who has Dementia with Lewy Bodies, I have had more problems with officials than enough, because when I tell them what I have, they treat me like a martian. What is DLB and how do you spell it?
It is sometimes easier to bend the rules and say Alzheimer's, because it is accepted more easily than Dementia. But that is life and we just have to accept it.
The Society is trying to educate people about the various forms of Dementia, but I have found many Government Departments do not want to know. We can only inform those who really want to know and understand.
I do think that when the National Strategy for Dementia is launched later this year, a lot more information will be available to those in the NHS and the public sector, then we may get some where.
I was on one of those committees for a few months and it was very interesting to see what was happening. I now hope that things will move faster and benefit everyone with this illness and their carers and families, whether it be treatment, training, diagnosis, or just basic information which still needs a lot more work doing on it.
But as with everything else it all takes time, patients and a lot of money to sort out.
But at least the Society is trying its best to sort things out, it may take time but they will get there.
Best Wishes
Ken
Best Wishes
Ken