1. kaz

    kaz Registered User

    May 3, 2004
    19
    Hi

    We have just got results back from the SPECT brain test that dad had we have been told it showed, Depression, Early on set Dementia, amyotrophy complex.

    Any one have any dealing with amyotrophy complex and what it is as his docotors says he does not know what it is which is not very helpful - is it connected to dementia. Wondered if anyone on here knows anything about it.

    Thanks Karen
     
  2. Skye

    Skye Registered User

    Aug 29, 2006
    17,000
    SW Scotland
    Hi Kaz

    Amyotrophy means muscle wastage, and can be very painful. It can be associated with diabetes -- is your dad diabetic?

    I haven't hears that it's connected with dementia, though someone else may have heard of this.
     
  3. kaz

    kaz Registered User

    May 3, 2004
    19
    hi

    Dads not diabetic has had numourous blood tests etc no mention of it at all think would have shown up by now
    thanks
     
  4. Sandy

    Sandy Registered User

    Mar 23, 2005
    6,847
    Dear kaz,

    I don't have any first-hand experience of this, but using Google I was able to find a term that sounds similar:

    Disinhibition-Dementia-Parkinsonism-Amyotrophy Complex (DDPAC)

    Most of the articles that discuss this condition are fairly technical, but here are two that are better than the others:

    http://ci.columbia.edu/c1182/web/sect_5/c1182_s5_4.html

    http://www.geneclinics.org/profiles/ftdp-17/details.html

    This condition, if that's what it is, is probably not that common so it's possible that one of your dad's doctors has not encountered it before.

    Looks like you will need the input of a consultant neurologist/psychiatrist to get a better picture.

    Take care,

    Sandy
     

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