What do i do?
- Thread starter jan.s
- Start date
Thank you sylvia, your words are such a comfort, just knowing i'm not alone in going through this and that there is hope at the other side. He was like an old man today, unsteady and confused.
Thank you again.
Jan x
Jan, my heart goes out to you, it is really distressing I know. But I'm sure it will get better.
You must be really exhausted from it all. I hope you manage to get some sleep tonight.
You must be really exhausted from it all. I hope you manage to get some sleep tonight.
Dear Jan
Unfortunately it does sometimes get worse before it gets better, this illness completely puts one through the ringers. Like you I couldn’t bear to see dad very distressed, his pain felt like mine and after a bad visit I’d be left reeling for hours afterwards. However the calming meds really have helped and our CH manager said that most people at some point go over a ‘hump’ and find themselves in a much more peaceful place. It’s this transitional period that’s the worst. Also just wondered if R’s increased confusion today is a side-effect from the sleeping pill, they can sometimes cause that in which case as Grannie G says perhaps halving it initially isn’t a bad idea or even trying a different type. Dad takes Zopiclone which seems to work fairly well. If you can wipe today from your thoughts, tomorrow’s a new day and R. could well be on the up again. Look after yourself.
Px
Unfortunately it does sometimes get worse before it gets better, this illness completely puts one through the ringers. Like you I couldn’t bear to see dad very distressed, his pain felt like mine and after a bad visit I’d be left reeling for hours afterwards. However the calming meds really have helped and our CH manager said that most people at some point go over a ‘hump’ and find themselves in a much more peaceful place. It’s this transitional period that’s the worst. Also just wondered if R’s increased confusion today is a side-effect from the sleeping pill, they can sometimes cause that in which case as Grannie G says perhaps halving it initially isn’t a bad idea or even trying a different type. Dad takes Zopiclone which seems to work fairly well. If you can wipe today from your thoughts, tomorrow’s a new day and R. could well be on the up again. Look after yourself.
Px
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I hope you get some sleep Jan. It must be such an awful time. With dementia we lose our loved ones over and over and it takes a little piece of us each time there is a change.
Thinking of you xx
Nanak
Thinking of you xx
Nanak
Hi Jan,
please try and get some rest tonight. as others have said perhaps a change in medication will help with R drowsenes. you know that R is settled tonight so please tey and relax and reserve your energy for the meeting next week.
my MIL has been on an assessment unit for 12 weeks and they have been changing her medication as she was very agitated and had out bursts of physical agression, ow they have found the right medication she is a lot calmer, so there is medication out there so dont give up.
hope your furry friend is cuddled up with you tonight, wish i could have one but have an allergy.
jan1962
please try and get some rest tonight. as others have said perhaps a change in medication will help with R drowsenes. you know that R is settled tonight so please tey and relax and reserve your energy for the meeting next week.
my MIL has been on an assessment unit for 12 weeks and they have been changing her medication as she was very agitated and had out bursts of physical agression, ow they have found the right medication she is a lot calmer, so there is medication out there so dont give up.
hope your furry friend is cuddled up with you tonight, wish i could have one but have an allergy.
jan1962
Thinking of you today Jan, and hoping things will be better, but it's early days so I wouldn't worry too much at the moment (if possible) .
Jan - I hope your day is better. Bear with the time it takes to sort the medication. It can take ages and ages. And it will be slower out of hospiptal because all the blood tests take longer. I don't know if will cheer you up to tell you - but it took months with my mother - but in the end it was much better.
OK, you were right! A new day and a lovely visit today. He was happy, smiling, willing to co-operate with anything I asked.
I washed his hair with special shampoo, and he felt good. I helped him to shave, which his armed guard hadn't been doing, so I did it - not a perfect job, but then this shaving game is new to me!!
We laughed and walked and had a great time.
I shall hang on to that thought for tonight. Thank you to everybody who is contributing - you are keeping me going and I do need your support. I am dreading the meeting next week, but will get through it. If R has to move, then so be it, but I am sad to do that as he is so happy where he is and the personal care is brilliant. HE views the carers as his friends.
He is the toy boy for one of the older ladies there - she tells me she chats to him and today they gave each other a kiss. It almost made me cry to see such warmth and friendship.
Jan x
I washed his hair with special shampoo, and he felt good. I helped him to shave, which his armed guard hadn't been doing, so I did it - not a perfect job, but then this shaving game is new to me!!
We laughed and walked and had a great time.
I shall hang on to that thought for tonight. Thank you to everybody who is contributing - you are keeping me going and I do need your support. I am dreading the meeting next week, but will get through it. If R has to move, then so be it, but I am sad to do that as he is so happy where he is and the personal care is brilliant. HE views the carers as his friends.
He is the toy boy for one of the older ladies there - she tells me she chats to him and today they gave each other a kiss. It almost made me cry to see such warmth and friendship.
Jan x
