Welcome to my world

Norrms

Registered User
Feb 19, 2009
5,631
0
Torquay Devon
WELCOME TO MY WORLD OF DEMENTIA
Please, step this way and i will try and show you what it's really like to have dementia.
Oops! Mind your step please, that's what we call spatial awareness, what that means is sometimes you don't always see what's in front of you and tend to miss the steps going up or coming down so be careful. Pardon? You can't see properly? Does it feel like you have net curtains in front of your eyes? Yes, well that's perfectly normal for those with dementia, looking out on life seems so distorted sometimes, just dementia playing tricks on you. Please take a seat, OH OH ! Be careful you nearly missed the seat then, make sure it's right behind you before you sit as it can sometimes seem nearer than you think.
Would you like a drink ? There you go, a nice glass of cool water, sorry? You can't see it? Oh, I am so sorry, what was I thinking? that's because I have put it in a clear glass, here you go, it's in a nice coloured vessel now, is that easier to see? I am so pleased. What? Who's that at the window?? Oh please don't worry, it's probably dementia playing its tricks on you, come on let's go out for a bit of something to eat. Here you are, here's your coat, please don't worry you will find the arms soon, i will help, there you go! It doesn't matter how long it takes we will get there.
There you go, all inside the car, please put your seat belt on, Sorry? Hang on i will get out and put it on for you, it’s a bit of a ***** this dementia aint it? There you go, that's better, off we go.
WHOA!!! That’s the door handle not the window, please don't open that if you can remember, i know its hard. I am so pleased you feel better getting out and about, and i know how much you like watching the world go by, let’s have a drive over the moors before we go to town. Yes, it’s beautiful isn't it? The moors just go on forever, what? You feel as if you can breathe easier and see better out here, well that's wonderful, let’s go and get some lunch in town.
Here we go, wait!! Please wait until i stop the car before you get out and please stay on the pavement till we cross to the cafe. I know you don't like me holding your hand and i know you are not a child but i need to keep you safe,
WHOA!! Phew that was close, you didn't see that car? That why i need to hold onto you, so sorry didn't mean to shout, just frightened for you, come on let's get something to eat. What would you like? What do i think you want? How would i know? You want egg chips and beans, that's wonderful, would you like to order when the waiteress comes? Here she is.
No, he hasn't had a drink and hasn't got a speech impediment thank you, waitress!! He has dementia and mixes his words up sometimes, please don't worry it's not your fault, you don't know what you don't know I will drop some leaflets off. That was quick, here's your lunch, yes that's your knife on the right and fork on the left, don't worry about it. OOOPS missed your mouth? i do that so many times and please don't worry about the spillage, it will wash. No, i am sure the next table isn't looking at you and if they are then they are only curious and uneducated about those of us with dementia. Be careful that tea is hot, should have really got you a cold drink, .
I can see you yawning, are you tired? I know you feel you shouldn't be but it’s what happens, so much going on is bound to take it out of you. Here we go, back in the car now, sorry? You don't know where you are?? That’s ok, you're in your local town centre and we have just had lunch, Yes we really have and you enjoyed it LOL. Yes, i will take you home now, what do you mean you don't live here? You do my friend, come on in and sit down.
Please don't cry it's been such a good day really, believe me, it could have been a lot worse, I know your frightened and frustrated and don't ever think you are on your own, there are millions of us s around the world just like us. Sundowning is horrible, we must try and explain to all what it’s like, its happens most afternoons so I must ask your loved ones/carer to change all your appointments to “AM “so it's easier for you, you are the most important person in all this, and the best thing is try and have a nap for an hour,
Goodbye my friend,
Till next time
 

yosser

Registered User
Nov 12, 2020
271
0
Shenley Brook End Milton Keynes
WELCOME TO MY WORLD OF DEMENTIA
Please, step this way and i will try and show you what it's really like to have dementia.
Oops! Mind your step please, that's what we call spatial awareness, what that means is sometimes you don't always see what's in front of you and tend to miss the steps going up or coming down so be careful. Pardon? You can't see properly? Does it feel like you have net curtains in front of your eyes? Yes, well that's perfectly normal for those with dementia, looking out on life seems so distorted sometimes, just dementia playing tricks on you. Please take a seat, OH OH ! Be careful you nearly missed the seat then, make sure it's right behind you before you sit as it can sometimes seem nearer than you think.
Would you like a drink ? There you go, a nice glass of cool water, sorry? You can't see it? Oh, I am so sorry, what was I thinking? that's because I have put it in a clear glass, here you go, it's in a nice coloured vessel now, is that easier to see? I am so pleased. What? Who's that at the window?? Oh please don't worry, it's probably dementia playing its tricks on you, come on let's go out for a bit of something to eat. Here you are, here's your coat, please don't worry you will find the arms soon, i will help, there you go! It doesn't matter how long it takes we will get there.
There you go, all inside the car, please put your seat belt on, Sorry? Hang on i will get out and put it on for you, it’s a bit of a BUG***R this dementia aint it? There you go, that's better, off we go.
WHOA!!! That’s the door handle not the window, please don't open that if you can remember, i know its hard. I am so pleased you feel better getting out and about, and i know how much you like watching the world go by, let’s have a drive over the moors before we go to town. Yes, it’s beautiful isn't it? The moors just go on forever, what? You feel as if you can breathe easier and see better out here, well that's wonderful, let’s go and get some lunch in town.
Here we go, wait!! Please wait until i stop the car before you get out and please stay on the pavement till we cross to the cafe. I know you don't like me holding your hand and i know you are not a child but i need to keep you safe,
WHOA!! Phew that was close, you didn't see that car? That why i need to hold onto you, so sorry didn't mean to shout, just frightened for you, come on let's get something to eat. What would you like? What do i think you want? How would i know? You want egg chips and beans, that's wonderful, would you like to order when the waiteress comes? Here she is.
No, he hasn't had a drink and hasn't got a speech impediment thank you, waitress!! He has dementia and mixes his words up sometimes, please don't worry it's not your fault, you don't know what you don't know I will drop some leaflets off. That was quick, here's your lunch, yes that's your knife on the right and fork on the left, don't worry about it. OOOPS missed your mouth? i do that so many times and please don't worry about the spillage, it will wash. No, i am sure the next table isn't looking at you and if they are then they are only curious and uneducated about those of us with dementia. Be careful that tea is hot, should have really got you a cold drink, .
I can see you yawning, are you tired? I know you feel you shouldn't be but it’s what happens, so much going on is bound to take it out of you. Here we go, back in the car now, sorry? You don't know where you are?? That’s ok, you're in your local town centre and we have just had lunch, Yes we really have and you enjoyed it LOL. Yes, i will take you home now, what do you mean you don't live here? You do my friend, come on in and sit down.
Please don't cry it's been such a good day really, believe me, it could have been a lot worse, I know your frightened and frustrated and don't ever think you are on your own, there are millions of us s around the world just like us. Sundowning is horrible, we must try and explain to all what it’s like, its happens most afternoons so I must ask your loved ones/carer to change all your appointments to “AM “so it's easier for you, you are the most important person in all this, and the best thing is try and have a nap for an hour,
Goodbye my friend,
Till next time
Hi Norrms. Thought you may have moved on, enjoyed reading the above. This morning had help a friend trying to find her ? in a car park. As she had forgotten where she had parked it, This lady has short term memory problem. Sometime later still not found it, took her home .The lady’s son went back later with her & eventually found it, not in the area she thought it was parked. Having previously had a seizure, some time ago. I suggested she should try getting a doctors appointment, or one at a memory clinic locally . As for just jogging along.
Geoff?.
 

Sue741215

Registered User
Oct 18, 2019
444
0
Thank you Norms - I have tears in my eyes after reading your story and I'm not a cryer. I hope you know how amazing you are and how much you help carers like me to understand and to remember to behave well with our loved ones. Keep posting.
 

Maxxie

Registered User
Jul 21, 2022
12
0
Hi Norrms, I can see that you've been visiting our home recently, and didn't miss a thing.

Thank you for another precious lesson, and helping us as carers to appreciate the difficulties PWD face in every aspect of their day with this wretched disease. You always spell it out so succinctly, and in my case - and I suspect many other carers too - our spouses (or family members with dementia) aren't able to explain it so well to us. I always look forward to reading your posts, they really help me to keep trying harder - my tongue has deep teeth marks to prove it! Stay safe.
 

TNJJ

Registered User
May 7, 2019
2,967
0
cornwall
Thank you for this thread. It helps me understand my dad's problems better. I never thought about a clear glass being a problem. I will now use coloured ones.
 

Vincebeer

Registered User
May 13, 2022
30
0
WELCOME TO MY WORLD OF DEMENTIA
Please, step this way and i will try and show you what it's really like to have dementia.
Oops! Mind your step please, that's what we call spatial awareness, what that means is sometimes you don't always see what's in front of you and tend to miss the steps going up or coming down so be careful. Pardon? You can't see properly? Does it feel like you have net curtains in front of your eyes? Yes, well that's perfectly normal for those with dementia, looking out on life seems so distorted sometimes, just dementia playing tricks on you. Please take a seat, OH OH ! Be careful you nearly missed the seat then, make sure it's right behind you before you sit as it can sometimes seem nearer than you think.
Would you like a drink ? There you go, a nice glass of cool water, sorry? You can't see it? Oh, I am so sorry, what was I thinking? that's because I have put it in a clear glass, here you go, it's in a nice coloured vessel now, is that easier to see? I am so pleased. What? Who's that at the window?? Oh please don't worry, it's probably dementia playing its tricks on you, come on let's go out for a bit of something to eat. Here you are, here's your coat, please don't worry you will find the arms soon, i will help, there you go! It doesn't matter how long it takes we will get there.
There you go, all inside the car, please put your seat belt on, Sorry? Hang on i will get out and put it on for you, it’s a bit of a ***** this dementia aint it? There you go, that's better, off we go.
WHOA!!! That’s the door handle not the window, please don't open that if you can remember, i know its hard. I am so pleased you feel better getting out and about, and i know how much you like watching the world go by, let’s have a drive over the moors before we go to town. Yes, it’s beautiful isn't it? The moors just go on forever, what? You feel as if you can breathe easier and see better out here, well that's wonderful, let’s go and get some lunch in town.
Here we go, wait!! Please wait until i stop the car before you get out and please stay on the pavement till we cross to the cafe. I know you don't like me holding your hand and i know you are not a child but i need to keep you safe,
WHOA!! Phew that was close, you didn't see that car? That why i need to hold onto you, so sorry didn't mean to shout, just frightened for you, come on let's get something to eat. What would you like? What do i think you want? How would i know? You want egg chips and beans, that's wonderful, would you like to order when the waiteress comes? Here she is.
No, he hasn't had a drink and hasn't got a speech impediment thank you, waitress!! He has dementia and mixes his words up sometimes, please don't worry it's not your fault, you don't know what you don't know I will drop some leaflets off. That was quick, here's your lunch, yes that's your knife on the right and fork on the left, don't worry about it. OOOPS missed your mouth? i do that so many times and please don't worry about the spillage, it will wash. No, i am sure the next table isn't looking at you and if they are then they are only curious and uneducated about those of us with dementia. Be careful that tea is hot, should have really got you a cold drink, .
I can see you yawning, are you tired? I know you feel you shouldn't be but it’s what happens, so much going on is bound to take it out of you. Here we go, back in the car now, sorry? You don't know where you are?? That’s ok, you're in your local town centre and we have just had lunch, Yes we really have and you enjoyed it LOL. Yes, i will take you home now, what do you mean you don't live here? You do my friend, come on in and sit down.
Please don't cry it's been such a good day really, believe me, it could have been a lot worse, I know your frightened and frustrated and don't ever think you are on your own, there are millions of us s around the world just like us. Sundowning is horrible, we must try and explain to all what it’s like, its happens most afternoons so I must ask your loved ones/carer to change all your appointments to “AM “so it's easier for you, you are the most important person in all this, and the best thing is try and have a nap for an hour,
Goodbye my friend,
Till next time
Thanks Norms — we learn everyday .🙏
Also reading the book On Pluto ; Greg Obrien & one by Julie Andrews
 

yosser

Registered User
Nov 12, 2020
271
0
Shenley Brook End Milton Keynes
Hello Norms, it seem you’re dementia is getting worse now. Reference “Sundowning” this normally happens in the evening, around dusk. You can get a growing sense of agitation or anxiety at this time.It often makes a person feel very strong,& they are in the wrong place.It’s more common during middle & later stages of dementia.
 

ForgetMeNot2

New member
Sep 11, 2023
3
0
West Yorkshire
Hi Norms,
Im so pleased to have read your post, you have a very lovely way of putting down what we go through. Please never stop posting... i look forward to your posts
 

Lin B

Registered User
Aug 18, 2022
142
0
Hi Norms. Thank you for this. Everything you have written happens to my husband and it has opened my eyes some more. It has helped me to understand how things must be for him so thank you so much for sharing. Big hugs.
 

Dot Stoker

New member
May 29, 2023
1
0
WELCOME TO MY WORLD OF DEMENTIA
Please, step this way and i will try and show you what it's really like to have dementia.
Oops! Mind your step please, that's what we call spatial awareness, what that means is sometimes you don't always see what's in front of you and tend to miss the steps going up or coming down so be careful. Pardon? You can't see properly? Does it feel like you have net curtains in front of your eyes? Yes, well that's perfectly normal for those with dementia, looking out on life seems so distorted sometimes, just dementia playing tricks on you. Please take a seat, OH OH ! Be careful you nearly missed the seat then, make sure it's right behind you before you sit as it can sometimes seem nearer than you think.
Would you like a drink ? There you go, a nice glass of cool water, sorry? You can't see it? Oh, I am so sorry, what was I thinking? that's because I have put it in a clear glass, here you go, it's in a nice coloured vessel now, is that easier to see? I am so pleased. What? Who's that at the window?? Oh please don't worry, it's probably dementia playing its tricks on you, come on let's go out for a bit of something to eat. Here you are, here's your coat, please don't worry you will find the arms soon, i will help, there you go! It doesn't matter how long it takes we will get there.
There you go, all inside the car, please put your seat belt on, Sorry? Hang on i will get out and put it on for you, it’s a bit of a ***** this dementia aint it? There you go, that's better, off we go.
WHOA!!! That’s the door handle not the window, please don't open that if you can remember, i know its hard. I am so pleased you feel better getting out and about, and i know how much you like watching the world go by, let’s have a drive over the moors before we go to town. Yes, it’s beautiful isn't it? The moors just go on forever, what? You feel as if you can breathe easier and see better out here, well that's wonderful, let’s go and get some lunch in town.
Here we go, wait!! Please wait until i stop the car before you get out and please stay on the pavement till we cross to the cafe. I know you don't like me holding your hand and i know you are not a child but i need to keep you safe,
WHOA!! Phew that was close, you didn't see that car? That why i need to hold onto you, so sorry didn't mean to shout, just frightened for you, come on let's get something to eat. What would you like? What do i think you want? How would i know? You want egg chips and beans, that's wonderful, would you like to order when the waiteress comes? Here she is.
No, he hasn't had a drink and hasn't got a speech impediment thank you, waitress!! He has dementia and mixes his words up sometimes, please don't worry it's not your fault, you don't know what you don't know I will drop some leaflets off. That was quick, here's your lunch, yes that's your knife on the right and fork on the left, don't worry about it. OOOPS missed your mouth? i do that so many times and please don't worry about the spillage, it will wash. No, i am sure the next table isn't looking at you and if they are then they are only curious and uneducated about those of us with dementia. Be careful that tea is hot, should have really got you a cold drink, .
I can see you yawning, are you tired? I know you feel you shouldn't be but it’s what happens, so much going on is bound to take it out of you. Here we go, back in the car now, sorry? You don't know where you are?? That’s ok, you're in your local town centre and we have just had lunch, Yes we really have and you enjoyed it LOL. Yes, i will take you home now, what do you mean you don't live here? You do my friend, come on in and sit down.
Please don't cry it's been such a good day really, believe me, it could have been a lot worse, I know your frightened and frustrated and don't ever think you are on your own, there are millions of us s around the world just like us. Sundowning is horrible, we must try and explain to all what it’s like, its happens most afternoons so I must ask your loved ones/carer to change all your appointments to “AM “so it's easier for you, you are the most important person in all this, and the best thing is try and have a nap for an hour,
Goodbye my friend,
Till next time
Reading this gives such a valuable insight to the disease....how are you doing now?
 

special 1

Registered User
Oct 16, 2023
143
0
Hi there. What a nice way of putting it out there to us all. Yes it lets us understand things a bit better. My tongue is just about falling off. Ha! Ha ! 🎄🎄 Big hugs