Mum is in 7th year of VasDem. She has been sent to hospital twice this week as an emergency by the CH, who rang me to go to the hospital after she had left the CH. The first time was because they found a soft tissue lump on her hip - we waited just over five hours for an X-ray and blood tests, to be told her GP should have made an Out Patient appointment for her for an ultrasound scan.
The second time (at 2.30am) the CH sent her in as an emergency because she was "unresponsive". After four hours of tests we were told she had merely been deeply asleep and nothing unusual had been found after chest X-ray and more blood tests - this time it took another four hours to get ambulance transport back to the CH. Altogether distressing and upsetting.
Basically I want to instruct the CH not to send her to hospital again unless she appears to be in pain. I want them to keep her at the CH, and keep her comfortable and pain free with GP's help if necessary. I have EPA, and she has a Living Will with a DNR. I don't want her to have any treatment which might prolong her life, which is fully in accordance with her expressed wishes.
Has anyone given written instructions to their CH about this, and how forceful can I be in pushing for it? Also, could the CH refuse to look after her there?
All advice much appreciated!!
The second time (at 2.30am) the CH sent her in as an emergency because she was "unresponsive". After four hours of tests we were told she had merely been deeply asleep and nothing unusual had been found after chest X-ray and more blood tests - this time it took another four hours to get ambulance transport back to the CH. Altogether distressing and upsetting.
Basically I want to instruct the CH not to send her to hospital again unless she appears to be in pain. I want them to keep her at the CH, and keep her comfortable and pain free with GP's help if necessary. I have EPA, and she has a Living Will with a DNR. I don't want her to have any treatment which might prolong her life, which is fully in accordance with her expressed wishes.
Has anyone given written instructions to their CH about this, and how forceful can I be in pushing for it? Also, could the CH refuse to look after her there?
All advice much appreciated!!