Another post from a clueless newbie. This is all still so foreign to me and I have so many questions.
Ron has FTD, 52yrs old, and now not working, not driving and kind of pottering round the house and in a very flat emotional state. Very little conversation happens, it is not a marriage of equals any more. What I want to try and establish is how long will I be able to leave him alone? I know of course, that each person is different.
I'd love to hear from you who are a bit further along about how long you had of this stage, after diagnosis, until caregivers were needed in the house? Also then how long from then till the move to a care home? I wish so much I knew. Actually, I wish even more that I could press the FF button and have it all done, I've always been that way, if there is something difficult I always want to get it over with! I was talking on the phone last night to a lady who is further down this path, and her husband is in care, and doesn't know her now, and I said I actually felt envious of her, as she has quite a high level of independence now, and there is not all that anxiety around his safety at home. There is also now the beginnings of her living her life for herself, and picking up the pieces and moving on.... Am I the only one with these awful thoughts?
Anne
Ron has FTD, 52yrs old, and now not working, not driving and kind of pottering round the house and in a very flat emotional state. Very little conversation happens, it is not a marriage of equals any more. What I want to try and establish is how long will I be able to leave him alone? I know of course, that each person is different.
I'd love to hear from you who are a bit further along about how long you had of this stage, after diagnosis, until caregivers were needed in the house? Also then how long from then till the move to a care home? I wish so much I knew. Actually, I wish even more that I could press the FF button and have it all done, I've always been that way, if there is something difficult I always want to get it over with! I was talking on the phone last night to a lady who is further down this path, and her husband is in care, and doesn't know her now, and I said I actually felt envious of her, as she has quite a high level of independence now, and there is not all that anxiety around his safety at home. There is also now the beginnings of her living her life for herself, and picking up the pieces and moving on.... Am I the only one with these awful thoughts?
Anne