This week's challenges - Dental treatment & Mum still not accepting support visits

Mumlikesflowers

Registered User
Aug 13, 2020
220
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In January Mum had a dental check up and a hygenist appointment.

It's a new dentist to us and my Dad is a retired dentist. I went to the first appointment and the dentist had taken my note not to patronise Mum as licence to speak to her like anyone else. She had a low Irish voice and Mum couldn't hear what she was saying. I had to say 'you do need to be clear with her'. Mum was unco-operative and distressed and it was difficult to get her to open her mouth.

I said to Dad after, just as well you didn't go with as you might have found it very embarrassing. So we were on tenderhooks about the hygenist. Mum was as good as gold. Although I think they made a conscious decision, probably based on the notes from appt 1 and me sending another note before, not to use the sucker. Mum's dental hygiene was seen as not a disaster which was pleasing. In her mind it's still important to her, not least as the wife of a dentist.

This Thursday is the dental treatment though. The dentist said it was necessary and I agreed. One filling. The first two appointments were an example of the unpredictability. You don't expect bad stuff to happen and it does. You expect it to be a trainwreck, and it's fine. I said to Dad earlier that the dentist had mentioned injection in the first appointment. Dad had two fillings with her this week with no injection. We agreed we go with what the dentist needs and wants in the situation. Obviously having a gum injection and how it feels afterwards would be upsetting for a person with middle stage dementia. It will be stressful if Mum fails to play ball on Thursday but to me, there's never a better time than now when she is still able to communicate and understand to some extent. I just wondered if others had experience to share.

The other bit is when to talk about stuff. I tend to go with most things 'on the day'. I live with Mum now by the way with Dad living independently. But who would want to know about something like that on the day? We all need a chance to get our head round something beforehand. But of course often that's not going to be possible and you just cause unnecessary distress. I also write stuff down but that's usually on the day ie we will go here and x and y will happen. Usually that helps but sometimes it backfires and she stares at it over and over and works herself up.

It's at 1230pm and there is a dementia cafe that we have been going to beforehand all three of us but in the past this was triggering for Mum. The question is should I save all her energies for the appointment and have to find things to do at home all morning and go over and over what's going to happen or do we go dementia cafe (which is just near where Dad lives and where the dentist is) and potentially overwhelm her before another overwhelming experience? There will still be time to kill in between the two if we do go.

In reality I have to play all of this by ear. And partly it's how I'm doing. If I'm feeling like rubbish, then I don't want to be going through stuff the day before and the can of worms it can open. And to be honest, I'm quite beleagured at the mo. My gut feeling is that I do want to cover it the day before though. It feels indecent with some things just to mention them on the day. Obviously I choose a receptive moment and if it doesn't present, I wait til the day.

There's other triggering stuff this week in that I'm still struggling with Mum accepting any outside help. Dad is great and gives me some respite but that hasn't always been the case since I became full-time carer and if she is going to end up in care I feel I do her no favours not to expose her to the reality of having help from strangers. I thought I'd resolved with the charity how the visits would work best but D still tends to be too lively with Mum and Mum feels like she's having to perform. Last week went tits up (last went tits up before Xmas). Before Xmas I cancelled the next visit but I haven't done this time. I said to D when I said to Mum about her coming, Mum said oh no she talks too much. Normally I don't say anything to Mum prior to visit and I won't do this time. I've had to push back against the idea that it would all be rosier if they took her out and said no I know what I'm on about that won't work and my Dad and I can do that bit. So it's just sitting with her and watch the box for an hour so I can have one hour a week to myself that's not covered by Dad. I will message D again before (she's a very sweet person) to be low key and hang back. I have a feeling finally this penny may have dropped after it's gone wrong again. I don't expect Mum to love it. I don't need that. But to bear it. At least she won't really remember last week. She knows enough by now though to say 'oh no' at the prospect. It puts me on tenderhooks the whole day beforehand and the thought that I can't share care with anyone because Mum won't accept it is very demoralising.
 

Toopie28

Registered User
Jun 7, 2022
327
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I'm sorry to hear you are going through this - you will get a ton of help on this forum.

As you know, one size does not fit all.
Regarding outside help:
My mum would NOT under any circumstances accept any help as she didn't "need it" and would throw tantrums and get really angry and moody.

Finally I got my brother (the invisible - he doesn't visit often but she's a mouse with him) to insist that we were getting a helper. Sometimes someone with authority - doctor - can suggest and your mum may allow it.

Ma still fights me every step of the way with our wonderful, patient helper. She talks too much. She's too nosy. She laughs too loud. She commands and I have to obey (yeh, right!!!).
But for my sanity I brought her in and she's staying.
Ma still is in hostess mode with her - and it's been 7 months. She's in hostess with everyone except me.

Are you able to bring someone in and then leave for your "appointment"? Or just a walk.
I don't think your Mum will ever welcome anyone since she has you - but for your sanity and rest, we have to push the issue.
 

Mumlikesflowers

Registered User
Aug 13, 2020
220
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One of the things I've found most difficult is when people seem to imply I'm not understanding my own needs by not having more help. It's especially annoying because this has been my field of work previously. If I could get her to accept lots more external input, then would I do other things and have a more balanced life?! It's good to hear I'm not the only one where they aren't ever going to bond and settle in with the support. Although with cognitive decline there may be a change. And yes, I read stories here of People with Dementia very anxious living on their own and so improved by going into care and I think because I've avoided that decline by being here it will be a lot harder to do.
 

Toopie28

Registered User
Jun 7, 2022
327
0
One of the things I've found most difficult is when people seem to imply I'm not understanding my own needs by not having more help. It's especially annoying because this has been my field of work previously. If I could get her to accept lots more external input, then would I do other things and have a more balanced life?! It's good to hear I'm not the only one where they aren't ever going to bond and settle in with the support. Although with cognitive decline there may be a change. And yes, I read stories here of People with Dementia very anxious living on their own and so improved by going into care and I think because I've avoided that decline by being here it will be a lot harder to do.
Yes!!!
The "look after yourself" first.
How is that even possible? I've been trying to do that since day one but when you're on your own... what can you do?

I don't live with my Ma and I'm a completel mess so I can't possibly imagine what stress that brings.

I'm at the other side of the world, with cameras that monitor her and make all the appointments and care from afar.

In my case, Ma was so independent she never asked anyone for help.
She fights me on everything.
This caregiver I got from a friend, and she's incredible. More so for me because I can sleep for 3 hours A-day without worrying about what mischief Ma's going to get into.

I do know that if this caregiver wasn't with us, then yes she would be in a home.
Again it may take away the stress for 3 hours only, but my goodness, what an amazing 3 hours.

A lot of people on here have gone past that stage. They have been there. They know the guilt. The hopelessness. The panic (well for me). And the solution in all lot of this is a care home.
I'm having great difficulty with that part.

Oh I did send someone over who was
" in the neighbourhood" with her service dog. It's actually another friend of a friend, that I pay to go over with her dog and Ma loves her... the dog that is.
 

Mumlikesflowers

Registered User
Aug 13, 2020
220
0
Thanks for your replies Toopie28. I think it's not where you are geographically but how involved you are and clearly you very much are. With my sis she is far away but not involved until she decides to be. She just wouldn't be having the guilt I would if and when the care home stuff kicks in. My mind also boggles on that one although I have visited a few.