THE RAW TRUTH ABOUT LEWY BODY'S DEMENTIA
This morning my left arm aches, it`s where Elaine had to hold me so tight and so hard last night as the hallucinations came thick and fast. They started out as Night terrors then quickly descended into hallucinations as i woke . The sheer ferocity of these is petrifying, the feeling as if i am being dragged down to the depths of hell is the only clear way i can explain it, and the sheer terror that runs through my body is so hard to explain.
I screamed so loud and so long my throat hurts this morning, i reached a note i could never possibly do when just sitting here, the fear that fills me affects me so much i am somehow able to do this, and yet not possible at any other time. We must have gone back to sleep at some time, but goodness knows what time it was, but as i woke and looked at my Angel Elaine, the bags under her eyes, every line on her face was visible and the tiredness in her eyes is something i will never forget. Her exhaustion shows at every turn this morning, as she troops on, supposedly unaffected, i know different, i know better, i know her more than most and i KNOW she is absolutely shattered, and yet life goes on, and life will go, on regardless.
This is the RAW TRUTH about living with lewy Body's type dementia, such a little known disease amongst many, including Dr`s and those in the medical field, and yet, affects so very many, more than you probably realise, some of us are convinced its the second most common form of dementia, and yet least diagnosed. I have no answer, but what i do know is i am, and will be forever grateful to my Angel Elaine, and others like her, all around the world, for being there, when we most need them to be
Please share, oh, and good morning all xxxxxxxxxx
This morning my left arm aches, it`s where Elaine had to hold me so tight and so hard last night as the hallucinations came thick and fast. They started out as Night terrors then quickly descended into hallucinations as i woke . The sheer ferocity of these is petrifying, the feeling as if i am being dragged down to the depths of hell is the only clear way i can explain it, and the sheer terror that runs through my body is so hard to explain.
I screamed so loud and so long my throat hurts this morning, i reached a note i could never possibly do when just sitting here, the fear that fills me affects me so much i am somehow able to do this, and yet not possible at any other time. We must have gone back to sleep at some time, but goodness knows what time it was, but as i woke and looked at my Angel Elaine, the bags under her eyes, every line on her face was visible and the tiredness in her eyes is something i will never forget. Her exhaustion shows at every turn this morning, as she troops on, supposedly unaffected, i know different, i know better, i know her more than most and i KNOW she is absolutely shattered, and yet life goes on, and life will go, on regardless.
This is the RAW TRUTH about living with lewy Body's type dementia, such a little known disease amongst many, including Dr`s and those in the medical field, and yet, affects so very many, more than you probably realise, some of us are convinced its the second most common form of dementia, and yet least diagnosed. I have no answer, but what i do know is i am, and will be forever grateful to my Angel Elaine, and others like her, all around the world, for being there, when we most need them to be
Please share, oh, and good morning all xxxxxxxxxx