• Expert Q&A: Rare dementias - Tues 3 March, 3-4pm

    Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

The Great Escape


Registered User
Feb 17, 2006
As I wait for the great Escape ( that what it feels like :eek: :) :rolleyes: :) ) 5am then flight 7:30

One thing has been bugging me, when talking to care home manger at mum respite . I of course had to mention dementia medication , he added that when in a care home full time , when they score under 10 they take the medication away, I keep quite ,because my mum score was 5 , I can’t understand this scouring as they are judging every person the same with dementia AD , then they say that every person with dementia is different , I believe that because my mother may score 5 , but my mother is not what the system of scouring says she should be so she is different from every one that’s why I shall keep mum at home with me as long as I can, because the system government out there does not care really all they want is to control us with there rules , if my mother had not got AD I would never of believed that.

He even told me that all this thing with CPN & dementia nurse not being a mental illness is just John mayor new way of thinking

As one day he had a man that had AD that was in World War 2 with post traumatic shock, he phone the army who said that if he had dementia or AD they did not want to know & could not help, so all they could do was call a CPN .

What my point don’t know ,because there never seem a point when it come to AD .Just look after myself so I can look after mum AD does not drive me mad , but this system does

Michael E

Registered User
Apr 14, 2005
Ronda Spain
Margarita hi,

good luck escaping down the tunnel - hope it all goes well for you... I think it's pretty hot down there at the moment - so drink a sangria or 4 for me as well...

If it's any comfort the system here in France is not very different - there is no central information or co-ordination centre. You just have to find things out for yourself. The drugs issue certainly seems easier because the government would not survive 5 minutes if it refused medical help - however except in cases like AD everybody has to pay for part of the treatment or have insurance to pay for part..

Anyway a trip to the Rock should help you to not worry about it all for a while - enjoy and relax

Hasta la vista


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