Telling lies

Cathbach

Registered User
Jul 28, 2023
18
0
Hi,
I’m Helena, my 89 year old mum is in a care home near me ( 200 miles away from the family home) and my 91 year old dad is in the process of selling the family home and buying a (supported) flat on the same site as mum’s home. Mum was diagnosed about 3/4 years ago with mixed type, and she’s been in a home since September. All The professionals involved (dementia nurse, GP, Social worker, care workers) believe this is the right thing for mum.
But, she is nowhere near as bad as other residents. She can still hold a conversation (although will repeat herself and can’t retain info), can play scrabble, express preference etc. Her memory is so poor that she can’t recall visits 30 mins after we’ve left, can’t watch TV/read because she can’t follow the thread (can still read, but forgets). Before she went in she was forgetting meds, to change, shop, clean, eat, if she tried to cook she forgot what she was doing and left hobs on , was very argumentative and confrontational, throwing things, and we had to hide all the knives because she threatened dad. . She flatly refused to have support at home (over my dead body), and refused to leave the house.
She is so much better now, putting on weight, calmer, less anxious, because the staff who are brilliant make sure she eats, takes her meds, washes, socialises etc. Every time any of us visit she is asking how she can get out and go home, so every time we have to try to think of something to say to pacify her. If we told her the truth it would really upset her, make her angry, and there would be an argument. She’d then forget all that and the rest of us will remember the unpleasantness, the anger, the upset, and question what we’re doing.
How do other people cope with a situation like this?
 

SeaSwallow

Volunteer Moderator
Oct 28, 2019
6,767
0
@Cathbach I really does sound as if you are saying the right things to keep your mum pacified when she says that she wants to go home. On here these are called 'love lies' or sometimes 'therapeutic untruths'.
Our members would use various sayings, it's too cold, it's raining, the house needs work done, the heating's not working, etc. You can probably keep repeating these if your mum forgets what you say. It is not easy but for the best to keep your mum content.
 

Cathbach

Registered User
Jul 28, 2023
18
0
@Cathbach I really does sound as if you are saying the right things to keep your mum pacified when she says that she wants to go home. On here these are called 'love lies' or sometimes 'therapeutic untruths'.
Our members would use various sayings, it's too cold, it's raining, the house needs work done, the heating's not working, etc. You can probably keep repeating these if your mum forgets what you say. It is not easy but for the best to keep your mum content.
Thank you, that really helps. We tend to say we need to speak to the consultant (she thinks she’s in a hospital) and they aren’t around, or today I said I’d speak to a friend of mine who has a mum in a similar position. We all hate telling her lies, (especially as she seems so ‘normal’ especially compared with the other residents), but we don’t think telling her the truth would serve any useful purpose. Dad struggles especially because he feels he’s let her down, but has also said he can’t look after her.
 

SeaSwallow

Volunteer Moderator
Oct 28, 2019
6,767
0
Thank you, that really helps. We tend to say we need to speak to the consultant (she thinks she’s in a hospital) and they aren’t around, or today I said I’d speak to a friend of mine who has a mum in a similar position. We all hate telling her lies, (especially as she seems so ‘normal’ especially compared with the other residents), but we don’t think telling her the truth would serve any useful purpose. Dad struggles especially because he feels he’s let her down, but has also said he can’t look after her.
Please reassure your dad that he has not let your mum down, she is in the best place to keep her safe and well.
 

canary

Registered User
Feb 25, 2014
25,428
0
South coast
Hello @Cathbach

What your mum was like at home sounds horrendous and Im sure that she is in the right place, especially if she is responding to the care there.

I had a similar thing with mum who also kept asking to go home. I told mum she was convalescing and the doctors wanted to keep an eye on how she was doing for the next couple of days. By the next day she had forgotten and I would say the same thing all over again. Eventually, as she settled, she stopped.
 

Cathbach

Registered User
Jul 28, 2023
18
0
Thank you. Yes we’ve used that one too. What we’re starting to find though is that when something has been repeated several times she is starting to recall it’s been said before, which is weird because she introduces me to her friend in there every time I visit!
 

canary

Registered User
Feb 25, 2014
25,428
0
South coast
What we’re starting to find though is that when something has been repeated several times she is starting to recall it’s been said before
Then use things like - you are convalescing - which is OK if she remembers, and be very vague about times and how long she will need to stay
 

Rayreadynow

Registered User
Dec 31, 2023
368
0
Hi,
I’m Helena, my 89 year old mum is in a care home near me ( 200 miles away from the family home) and my 91 year old dad is in the process of selling the family home and buying a (supported) flat on the same site as mum’s home. Mum was diagnosed about 3/4 years ago with mixed type, and she’s been in a home since September. All The professionals involved (dementia nurse, GP, Social worker, care workers) believe this is the right thing for mum.
But, she is nowhere near as bad as other residents. She can still hold a conversation (although will repeat herself and can’t retain info), can play scrabble, express preference etc. Her memory is so poor that she can’t recall visits 30 mins after we’ve left, can’t watch TV/read because she can’t follow the thread (can still read, but forgets). Before she went in she was forgetting meds, to change, shop, clean, eat, if she tried to cook she forgot what she was doing and left hobs on , was very argumentative and confrontational, throwing things, and we had to hide all the knives because she threatened dad. . She flatly refused to have support at home (over my dead body), and refused to leave the house.
She is so much better now, putting on weight, calmer, less anxious, because the staff who are brilliant make sure she eats, takes her meds, washes, socialises etc. Every time any of us visit she is asking how she can get out and go home, so every time we have to try to think of something to say to pacify her. If we told her the truth it would really upset her, make her angry, and there would be an argument. She’d then forget all that and the rest of us will remember the unpleasantness, the anger, the upset, and question what we’re doing.
How do other people cope with a situation like this?
From the scenario you describe it sounds like financially that you have no problems....mum in a care home and the local council are paying...dad is down sizing at 91 to buy a flat ! I have a mother in a care home with a modest bungalow and the care home are going through £1400 per week for a small room on the upper floor, canteen style meals and little meaningful activities, and shes been in there for two years....
 

Tweezle

New member
Dec 24, 2023
3
0
Hi,
I’m Helena, my 89 year old mum is in a care home near me ( 200 miles away from the family home) and my 91 year old dad is in the process of selling the family home and buying a (supported) flat on the same site as mum’s home. Mum was diagnosed about 3/4 years ago with mixed type, and she’s been in a home since September. All The professionals involved (dementia nurse, GP, Social worker, care workers) believe this is the right thing for mum.
But, she is nowhere near as bad as other residents. She can still hold a conversation (although will repeat herself and can’t retain info), can play scrabble, express preference etc. Her memory is so poor that she can’t recall visits 30 mins after we’ve left, can’t watch TV/read because she can’t follow the thread (can still read, but forgets). Before she went in she was forgetting meds, to change, shop, clean, eat, if she tried to cook she forgot what she was doing and left hobs on , was very argumentative and confrontational, throwing things, and we had to hide all the knives because she threatened dad. . She flatly refused to have support at home (over my dead body), and refused to leave the house.
She is so much better now, putting on weight, calmer, less anxious, because the staff who are brilliant make sure she eats, takes her meds, washes, socialises etc. Every time any of us visit she is asking how she can get out and go home, so every time we have to try to think of something to say to pacify her. If we told her the truth it would really upset her, make her angry, and there would be an argument. She’d then forget all that and the rest of us will remember the unpleasantness, the anger, the upset, and question what we’re doing.
How do other people cope with a situation like this?
Hi @Cathbach
This sounds just like my mum. My sister and I are being bombardes with texts (50 a day at least) asking for us to visit, if we are in, etc even though we have just visited or spoken on the phone. She then gets angry if we go out or away for a weekend saying how unkind we are. I liked someone’s idea of “love lies” so I will be trying this. We have a care package finally so are applying for sheltered living. I hope this makes a difference to her and her wellbeing. It’s comforting to know we’re not alone in all this.
 

Cathbach

Registered User
Jul 28, 2023
18
0
From the scenario you describe it sounds like financially that you have no problems....mum in a care home and the local council are paying...dad is down sizing at 91 to buy a flat ! I have a mother in a care home with a modest bungalow and the care home are going through £1400 per week for a small room on the upper floor, canteen style meals and little meaningful activities, and shes been in there for two years....
You’re right, mum and dad worked f/t all their lives and saved. So at the moment dad’s able to use their savings to pay for mum’s care (Not local council) He’s downsizing for several reasons, including to be closer to mum, because he can’t really look after the house any more and it needs a lot of work, but mainly to release capital for mum. As you say, with the costs of carehome, what they have managed to put by won’t last forever.
 

Cathbach

Registered User
Jul 28, 2023
18
0
Hi @Cathbach
This sounds just like my mum. My sister and I are being bombardes with texts (50 a day at least) asking for us to visit, if we are in, etc even though we have just visited or spoken on the phone. She then gets angry if we go out or away for a weekend saying how unkind we are. I liked someone’s idea of “love lies” so I will be trying this. We have a care package finally so are applying for sheltered living. I hope this makes a difference to her and her wellbeing. It’s comforting to know we’re not alone in all this.
You poor things, that sounds awful. I find I t’s not so much the time it’s the emotional toll and feeling of guilt that’s the worst thing. I’ve just finished work so that I can help dad and spend time with mum.
 

Rayreadynow

Registered User
Dec 31, 2023
368
0
You’re right, mum and dad worked f/t all their lives and saved. So at the moment dad’s able to use their savings to pay for mum’s care (Not local council) He’s downsizing for several reasons, including to be closer to mum, because he can’t really look after the house any more and it needs a lot of work, but mainly to release capital for mum. As you say, with the costs of carehome, what they have managed to put by won’t last forever.
If he stays in his current home, the council will have to start paying for your mums care as soon as his savings gets to a certain level.