1. Welcome to Talking Point - an online community for everyone who is affected by dementia. Whether you have dementia or know someone who does, we will be there for you.

    Sign up to join the community, or Log in if you're already a member.

    If you need help using Talking Point, read our Help pages or contact us at talkingpoint@alzheimers.org.uk

  2. Tell us what you think of Talking Point in our Annual Survey - We rely on your feedback to tell us if we're meeting your needs and how we can improve.

    So please tell us what you think about Talking Point. You could win a £20 high street voucher for sharing your feedback.

    Click here to complete the survey.

Such is dementia

Discussion in 'I have dementia' started by Norrms, Sep 11, 2017.

  1. Norrms

    Norrms Registered User

    Feb 19, 2009
    Torquay Devon

    As I walk through the street, I am there, yet I am not,
    You see me, even hear me, yet I don't see you
    I am not in your world, I am NOT in my own world,
    I am in dementia`s world where nothing is real,
    YOU are not, THANKFULLY
    I stand and stare at the shop windows, but I don't see me,
    Sometimes I see a younger me, sometimes an older me,
    But I NEVER SEE ME, never the REAL ME,
    You hear me speak, but sometimes I don't hear you,
    I want to hear you, I want to hang on to every word,
    I want this world to make sense again,
    But of course, it doesn't, not anymore,
    I see where your going, but I don't know where I am going,
    I hear you laughing, and yet I cannot laugh,
    Dementias world is devoid of all sense, humour, and direction,
    I walk in a maze of uncertainty and loneliness,
    Each step is so hard some days,
    Each step feels like a mile walked,
    I stumble and stagger as if walking over rough terrain,
    Sometimes falling over absolutely nothing, in a heap on the floor, in a heap of embarrassment,
    Never wanting to get up again, hoping dementia`s world will swallow me up,
    Sometimes I am here, sometimes not,
    Anf yet I feel I am everywhere, but yet? I am sadly NOWHERE


    Norrms Mc Namara

    Diagnosed with Dementia 9 years ago aged 50

    (feeling different today )

    Please share if you wish
  2. tryingmybest

    tryingmybest Registered User

    May 22, 2015
    Ahh so poignant Norms. I don't know what to say so am sending a huge hug. Xx
  3. Norrms

    Norrms Registered User

    Feb 19, 2009
    Torquay Devon
    Thank you dear friend xxxxxx
  4. Julia B

    Julia B Registered User

    Apr 13, 2015
    Normms, beautifully said, I'm so sorry you feel alone, big hug from a big Geordie lass x
  5. Agzy

    Agzy Registered User

    Nov 16, 2016
    Moreton, Wirral. UK.
    Every time you post Norrms I know I'm going to read something special, and this vivid account of how the dementia is progressing and how it feels to be you is very special. Intentional or not you help not just those who have the disease but those who care for them, thank you.
  6. dancer12

    dancer12 Registered User

    Jan 9, 2017
    Hi Norrms:

    Thanks. You have the ability to put your feelings into words. My husband was diagnosed with demensia @ 5 years ago. Since then I have been searching, searching & searching for somewhere that will help me understand his world and what he is going through. They say search and yee shall find, well I searched and finally found. I want to help but don't know how, I want to understand his feelings but he cannot tell me, I want to share his world but I can't find it. At least now I have a starting place and I can try not being so impatient with him.

    Anyway, A HUGE THANKS FOR SHARING, it means the world to me and I'm sure to others as well.

    Many Hugs & Keep Posting
  7. Norrms

    Norrms Registered User

    Feb 19, 2009
    Torquay Devon
    You are so very welcome Dancer 12 xxxxxxxxxxx
  8. Molly64

    Molly64 Registered User

    Oct 8, 2017
    Hi norm.. im new here and haven sussed how to post etc as yet. This is my first response.
    Thanks for posting. I am at the moment waiting for test ie MRI and memory tests, which im sure you will identify with as i identify with your pome. Its a long process isnt it? Anyway i just wanted to say hello and send you love. Its good to know im not aloneand encouraging to read your blogs.
  9. Malalie

    Malalie Registered User

    Sep 1, 2016
    Thank you. This is revealing and poignant poem - please keep writing.

Share This Page