Firstly, many thanks to all of you for your advice on our visit from the Pension Service (PS)last week. Sorry I've not been back to update you till now. It was quite a good visit and we have made the application for Attendance Allowance, and thanks to your advice it has been back-dated to August 2007. I wouldn't have known about this but for Talking Point help and Mr PS wasn't going to tell me - I had to bring it up myself.
My mum has been quite high maintenance over the past fortnight, just in terms of visits to doctor, hospital, hearing aid clinic, shopping trips, Pension Service visits etc. so I have spent more time with her than usual.
She started on Reminyl, low dose, just a year ago, and was fine to begin with. The consultant increased her dose around 6 months ago and more recently (just after Christmas) to the high dose. Whilst on the middle dose mum experienced the odd day of nausea, but on the high dose it is more frequent (two or three days a fortnight, but she 'remembers' it as every day). So we put her back on the middle dose but she is still feeling nauseous and her appetite has diminished. She has lost around half a stone from her usual weight and now weighs under 7 stone so she can ill afford to be missing meals. She has always been very small and slim and has had a small appetite but always enjoyed her food so it is difficult to see her uninterested in it.
I'm going to ring the consultant tomorrow but fear that she may have to stop taking Reminyl altogether and I'm so disappointed. I can't help thinking that without the drugs her condition may deteriorate much quicker. And I have already noticed a decline over the last 6 months.
Has anyone else experienced these side effects and do you have any tips or advice?
My mum has been quite high maintenance over the past fortnight, just in terms of visits to doctor, hospital, hearing aid clinic, shopping trips, Pension Service visits etc. so I have spent more time with her than usual.
She started on Reminyl, low dose, just a year ago, and was fine to begin with. The consultant increased her dose around 6 months ago and more recently (just after Christmas) to the high dose. Whilst on the middle dose mum experienced the odd day of nausea, but on the high dose it is more frequent (two or three days a fortnight, but she 'remembers' it as every day). So we put her back on the middle dose but she is still feeling nauseous and her appetite has diminished. She has lost around half a stone from her usual weight and now weighs under 7 stone so she can ill afford to be missing meals. She has always been very small and slim and has had a small appetite but always enjoyed her food so it is difficult to see her uninterested in it.
I'm going to ring the consultant tomorrow but fear that she may have to stop taking Reminyl altogether and I'm so disappointed. I can't help thinking that without the drugs her condition may deteriorate much quicker. And I have already noticed a decline over the last 6 months.
Has anyone else experienced these side effects and do you have any tips or advice?