1. 117katie

    117katie Guest

    We are all here, all crying out for help, and each one of us has a different experience. But the one thing we have in common is OUR PRIORITIES.

    So, I state my main priority, and ask anyone who CARES to add their own priority to the list.

    If nobody watches OUR LIST, then nobody CARES.

    So, my number one is:

    1. LISTEN AND HEAR

    Add your own priority, from number 2 to 999999999.99 recurring.

    Perhaps we may then be able to change the priorities of those who are DEEMED TO CARE ABOUT US, namely our GOVERNMENT, without us they would not be there,,, so it is OUR GOVERNMENT.

    NOT MR BROWN'S GOVERNMENT. NOR ANYBODY ELSE'S GOVERNMENT.

    What can we do to change their thinking? Don't know apart from offering MY PRIORITY for inclusion in the Mr Darling share-out-of-the-pot of taxation to which we all and THEM ALL, OUR OLDER PERSONS, have contributed.



    Katie
     
  2. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    68,661
    Kent
    My Priority

    First They Came for the Jews

    First they came for the Jews
    and I did not speak out
    because I was not a Jew.
    Then they came for the Communists
    and I did not speak out
    because I was not a Communist.
    Then they came for the trade unionists
    and I did not speak out
    because I was not a trade unionist.
    Then they came for me
    and there was no one left
    to speak out for me.


    Pastor Martin Niemöller
     
  3. 117katie

    117katie Guest

    #3 117katie, Mar 15, 2008
    Last edited by a moderator: Mar 15, 2008
    Two So Far

    ....understand that one,Sylvia.

    So who is up for their NUMBER 3?

    If you keep them short and sweet, I will guarantee to compile the list and ...

    I will DO WHATEVER IS NECESSARY with YOUR LIST OF YOUR PRIORITIES.


    KATIE
     
  4. hendy

    hendy Registered User

    Feb 20, 2008
    506
    West Yorkshire
    To show compassion for those in distress.
    Will that do katie?
    take care
    hendy
     
  5. 117katie

    117katie Guest

    Spot On, Hendy!

    Yep,that will do, hendy! SPOT ON!

    You've claimed the Number 3 spot for being SPOT ON.

    Katie
     
  6. Skye

    Skye Registered User

    Aug 29, 2006
    17,000
    SW Scotland
    My priority would be:

    CONTINUITY OF CARE.

    I want someone to be assigned to oversee the whole progression, so that the carer does not have to start a new battle every time there is a new setback. A real support.

    Wouldn't that be bliss?
     
  7. 117katie

    117katie Guest

    Yes! Yes! Yes!

    Oh yes! YES! YES!

    Said Katie, as she thumped the table in the Diner, even though Katie does not resemble Meg Ryan!

    Place no. 5 up for grabs now!

    Going , going , ....

    Katie
     
  8. Margaret W

    Margaret W Registered User

    Apr 28, 2007
    3,725
    North Derbyshire
    No 5. Rules for entitlement to care that are easily understood.

    No 6. Rules re funding that are easily understood.

    Margaret
     
  9. Taffy

    Taffy Registered User

    Apr 15, 2007
    1,314
    Good Luck Katie

    I say, Remember that these peoples are still a SOMEBODY

    stop turning a blind eye and allowing them to be treated as a NO BODY.

    Love Taffy.
     
  10. ishard

    ishard Registered User

    Jul 10, 2007
    98
    Value the carers.

    We, the carers, get sidetracked in a lot of decisions made for our loved ones and are not often listened to.

    We are expected to take the tripe any official feels like dishing out.

    Value us as saving the NHS thousands and thousands of pounds
    Value us as actually knowing our loved ones.
    Value us as experts in AD etc relevant to our loved ones
    Value us when we are trying to get the best for our loved ones

    I could go on listing but you all know this as well as I do
     
  11. Skye

    Skye Registered User

    Aug 29, 2006
    17,000
    SW Scotland
    What a good thread, Katie. Everything so far has struck a chord.

    If only the politicians will

     
  12. zoet

    zoet Registered User

    My priority

    Act with speed, efficiency and empathy.
     
  13. 117katie

    117katie Guest

    #13 117katie, Mar 16, 2008
    Last edited by a moderator: Mar 16, 2008
    O U R P R I O R I T I E S .... T H E L I S T S O F A R

    1. Listen and hear us
    2. Speak out on behalf of those who cannot speak out on their own behalf
    3. Show compassion for those in distress
    4. Continuity of care
    5. Rules for entitlement to care that are easily understood
    6. Rules re. funding that are easily understood
    7. Remember that these people are still a SOMEBODY
    8. Stop turning a blind eye and allowing them to be treated as a NOBODY
    9. Value the Carers, as saving the NHS thousands and thousands of pounds
    10. Value the Carers as actually knowing our loved ones
    11. Value us as experts in Alzheimers/Dementia relevant to our loved ones
    12. Value us when we are trying to get the best for our loved ones
    13. Act with speed, efficiency and empathy



    This list must grow - we will not stop at 13.

    And I invite all those TP members who are registered and who read, but for whatever reason choose not to post: Join us in creating this list of priorities.


    KATIE
     
  14. Tender Face

    Tender Face Account Closed

    Mar 14, 2006
    5,379
    NW England
    Respect .... and from that single word a whole list could grow

    Respect for my mother - including tolerance (improved awareness)
    Respect for basic needs even (medical and other professional care readily available)
    Respect for her wishes (including the support, financially and otherwise to maintain her in her own home as long as possible)
    Respect for the need for choices
    Respect for her and everyone like her who live without hope of 'cure' - and therefore respect for future generations that they might be given that hope ....
    Respect for the carers - appropriate and accessible support packages available to support their own needs alongside their caring responsibilities, appropriate financial support where necessary ....... all without having to 'do battle'........

    Better stop there before I reach Utopia!:(

    Karen, x
     
  15. christine_batch

    christine_batch Registered User

    Jul 31, 2007
    3,388
    Buckinghamshire
    Treating our loved ones as individuals, with compassion and dignity.

    Making it compolsery to correct AD/Dementia training.

    Christine
     
  16. ROSEANN

    ROSEANN Registered User

    Oct 1, 2006
    909
    staffordshire
    My priorites at the moment are to get SS to answer the phone and to remember that when they give us an emergency number and we have to ring it, it is an emergency and not keep us waiting all day.
    Roseann
     
  17. Margarita

    Margarita Registered User

    Feb 17, 2006
    10,824
    london
    My priorites is to organize some time out for Me
     
  18. 117katie

    117katie Guest

    We're now up to 30 - thanks to Tender Face who knows how to get us working!!

    1. Listen and hear us
    2. Speak out on behalf of those who cannot speak out on their own behalf
    3. Show compassion for those in distress
    4. Continuity of care
    5. Rules for entitlement to care that are easily understood
    6. Rules re. funding that are easily understood
    7. Remember that these people are still a SOMEBODY
    8. Stop turning a blind eye and allowing them to be treated as a NOBODY
    9. Value us, the Carers, for saving the NHS thousands and thousands of pounds
    10. Value us, the Carers, for actually knowing our loved ones
    11. Value us, the Carers, as experts in Alzheimer’s/Dementia relevant to our loved ones.
    12. Value us, the Carers, when we are trying to get the best for our loved ones
    13. Act with speed, efficiency and empathy
    14. Respect for all of us
    15. Tolerance of all of us
    16. Improved awareness of the problems we face
    17. Respect for basic needs
    18. Medical and professional care should be readily available
    19. Support, financial and otherwise, should be readily available to maintain people in their own home for as long as possible
    20. Respect for the need for choices
    21. Respect for those who live without hope of ‘cure’
    22. Respect for future generations that they might be given hope
    23. Appropriate and accessible support packages to enable Carers to support their own needs alongside their caring responsibilities
    24. Appropriate financial support where necessary
    25. Complete removal of the need to ‘do battle’ constantly
    26. Treat our loved ones as individuals, and with compassion and dignity
    27. Make it compulsory to correct AD/Dementia training
    28. Arrange for Social Services to answer the phone
    29. Arrange for Social Services to remember that when they give us an Emergency telephone number which then we have to ring, that it is an Emergency and that they should not to keep us waiting all day for someone to respond
    30. To enable us, the Carers, to organize time out for Me/Us
     
  19. christine_batch

    christine_batch Registered User

    Jul 31, 2007
    3,388
    Buckinghamshire
    Thank you Katie

    Dear Katie,

    Thank you for starting this thread. At least we are getting peoples views on what WE KNOW OUR LOVED ONES SHOULD HAVE.

    Love and best wishes
    Christine
     
  20. 117katie

    117katie Guest

    Awaiting The 100 Mark

    Dear Christine

    I will do serious things with the content of this thread, when we reach the 100 mark.

    Until then, I am compiling it day by day, and hour by hour (well, ok not hour by hour, I FIBBED, but couple or more times a day!!).

    It will remain more or less as it arrived on TP, unadulterated by my own sticky fingers!

    How are you? How's Peter? How's the "Kids"?

    Love
    Katie
     

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