Our Priorities

1

117katie

Guest
We are all here, all crying out for help, and each one of us has a different experience. But the one thing we have in common is OUR PRIORITIES.

So, I state my main priority, and ask anyone who CARES to add their own priority to the list.

If nobody watches OUR LIST, then nobody CARES.

So, my number one is:

1. LISTEN AND HEAR

Add your own priority, from number 2 to 999999999.99 recurring.

Perhaps we may then be able to change the priorities of those who are DEEMED TO CARE ABOUT US, namely our GOVERNMENT, without us they would not be there,,, so it is OUR GOVERNMENT.

NOT MR BROWN'S GOVERNMENT. NOR ANYBODY ELSE'S GOVERNMENT.

What can we do to change their thinking? Don't know apart from offering MY PRIORITY for inclusion in the Mr Darling share-out-of-the-pot of taxation to which we all and THEM ALL, OUR OLDER PERSONS, have contributed.



Katie
 

Grannie G

Volunteer Moderator
Apr 3, 2006
70,643
Kent
My Priority

First They Came for the Jews

First they came for the Jews
and I did not speak out
because I was not a Jew.
Then they came for the Communists
and I did not speak out
because I was not a Communist.
Then they came for the trade unionists
and I did not speak out
because I was not a trade unionist.
Then they came for me
and there was no one left
to speak out for me.


Pastor Martin Niemöller
 
1

117katie

Guest
Two So Far

....understand that one,Sylvia.

So who is up for their NUMBER 3?

If you keep them short and sweet, I will guarantee to compile the list and ...

I will DO WHATEVER IS NECESSARY with YOUR LIST OF YOUR PRIORITIES.


KATIE
 
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1

117katie

Guest
Spot On, Hendy!

Yep,that will do, hendy! SPOT ON!

You've claimed the Number 3 spot for being SPOT ON.

Katie
 

Skye

Registered User
Aug 29, 2006
17,000
SW Scotland
My priority would be:

CONTINUITY OF CARE.

I want someone to be assigned to oversee the whole progression, so that the carer does not have to start a new battle every time there is a new setback. A real support.

Wouldn't that be bliss?
 
1

117katie

Guest
Yes! Yes! Yes!

Oh yes! YES! YES!

Said Katie, as she thumped the table in the Diner, even though Katie does not resemble Meg Ryan!

Place no. 5 up for grabs now!

Going , going , ....

Katie
 

Taffy

Registered User
Apr 15, 2007
1,314
Good Luck Katie

I say, Remember that these peoples are still a SOMEBODY

stop turning a blind eye and allowing them to be treated as a NO BODY.

Love Taffy.
 

ishard

Registered User
Jul 10, 2007
98
Value the carers.

We, the carers, get sidetracked in a lot of decisions made for our loved ones and are not often listened to.

We are expected to take the tripe any official feels like dishing out.

Value us as saving the NHS thousands and thousands of pounds
Value us as actually knowing our loved ones.
Value us as experts in AD etc relevant to our loved ones
Value us when we are trying to get the best for our loved ones

I could go on listing but you all know this as well as I do
 
1

117katie

Guest
O U R P R I O R I T I E S .... T H E L I S T S O F A R

1. Listen and hear us
2. Speak out on behalf of those who cannot speak out on their own behalf
3. Show compassion for those in distress
4. Continuity of care
5. Rules for entitlement to care that are easily understood
6. Rules re. funding that are easily understood
7. Remember that these people are still a SOMEBODY
8. Stop turning a blind eye and allowing them to be treated as a NOBODY
9. Value the Carers, as saving the NHS thousands and thousands of pounds
10. Value the Carers as actually knowing our loved ones
11. Value us as experts in Alzheimers/Dementia relevant to our loved ones
12. Value us when we are trying to get the best for our loved ones
13. Act with speed, efficiency and empathy



This list must grow - we will not stop at 13.

And I invite all those TP members who are registered and who read, but for whatever reason choose not to post: Join us in creating this list of priorities.


KATIE
 
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Tender Face

Account Closed
Mar 14, 2006
5,379
NW England
Respect .... and from that single word a whole list could grow

Respect for my mother - including tolerance (improved awareness)
Respect for basic needs even (medical and other professional care readily available)
Respect for her wishes (including the support, financially and otherwise to maintain her in her own home as long as possible)
Respect for the need for choices
Respect for her and everyone like her who live without hope of 'cure' - and therefore respect for future generations that they might be given that hope ....
Respect for the carers - appropriate and accessible support packages available to support their own needs alongside their caring responsibilities, appropriate financial support where necessary ....... all without having to 'do battle'........

Better stop there before I reach Utopia!:(

Karen, x
 

ROSEANN

Registered User
Oct 1, 2006
909
71
staffordshire
My priorites at the moment are to get SS to answer the phone and to remember that when they give us an emergency number and we have to ring it, it is an emergency and not keep us waiting all day.
Roseann
 
1

117katie

Guest
We're now up to 30 - thanks to Tender Face who knows how to get us working!!

1. Listen and hear us
2. Speak out on behalf of those who cannot speak out on their own behalf
3. Show compassion for those in distress
4. Continuity of care
5. Rules for entitlement to care that are easily understood
6. Rules re. funding that are easily understood
7. Remember that these people are still a SOMEBODY
8. Stop turning a blind eye and allowing them to be treated as a NOBODY
9. Value us, the Carers, for saving the NHS thousands and thousands of pounds
10. Value us, the Carers, for actually knowing our loved ones
11. Value us, the Carers, as experts in Alzheimer’s/Dementia relevant to our loved ones.
12. Value us, the Carers, when we are trying to get the best for our loved ones
13. Act with speed, efficiency and empathy
14. Respect for all of us
15. Tolerance of all of us
16. Improved awareness of the problems we face
17. Respect for basic needs
18. Medical and professional care should be readily available
19. Support, financial and otherwise, should be readily available to maintain people in their own home for as long as possible
20. Respect for the need for choices
21. Respect for those who live without hope of ‘cure’
22. Respect for future generations that they might be given hope
23. Appropriate and accessible support packages to enable Carers to support their own needs alongside their caring responsibilities
24. Appropriate financial support where necessary
25. Complete removal of the need to ‘do battle’ constantly
26. Treat our loved ones as individuals, and with compassion and dignity
27. Make it compulsory to correct AD/Dementia training
28. Arrange for Social Services to answer the phone
29. Arrange for Social Services to remember that when they give us an Emergency telephone number which then we have to ring, that it is an Emergency and that they should not to keep us waiting all day for someone to respond
30. To enable us, the Carers, to organize time out for Me/Us
 

christine_batch

Registered User
Jul 31, 2007
3,388
Buckinghamshire
Thank you Katie

Dear Katie,

Thank you for starting this thread. At least we are getting peoples views on what WE KNOW OUR LOVED ONES SHOULD HAVE.

Love and best wishes
Christine
 
1

117katie

Guest
Awaiting The 100 Mark

Dear Christine

I will do serious things with the content of this thread, when we reach the 100 mark.

Until then, I am compiling it day by day, and hour by hour (well, ok not hour by hour, I FIBBED, but couple or more times a day!!).

It will remain more or less as it arrived on TP, unadulterated by my own sticky fingers!

How are you? How's Peter? How's the "Kids"?

Love
Katie