Since finding this site two weeks ago I have visited daily to read threads and although I have found comfort in reading from others in similar situations with this dreadful illness I also feel I have read of insight into some of the things infront of me.
Have other carers found a succession of weird and obsessive behaviours. With Jim earlier in the illness it was Keys, then it was socks, I would frequently find all the socks lined up on the bed and probably 2or 3 pair on his feet, then it was shaving to the point I thought he would have no face left, now it is coats he always has his coat on, yesterday two coats, a fleece and a walking jacket just to sit in the house and getting him to part company with them is nigh on impossible.
I also wonder about the drugs he has now been on aricept for over two years. I have read that after two years it probably has little effect and I some times wonder now if it is cruel to prolong this dreadful stage of semi awarness because those times when he is aware of his world falling apart cause him dreadful frustration and anger and I find that these are some of our saddest and hardest moments to deal with. I know that in two minutes he will have forgotten the outbursts but I am often left phsyically and emotionally drained.
Have other carers found a succession of weird and obsessive behaviours. With Jim earlier in the illness it was Keys, then it was socks, I would frequently find all the socks lined up on the bed and probably 2or 3 pair on his feet, then it was shaving to the point I thought he would have no face left, now it is coats he always has his coat on, yesterday two coats, a fleece and a walking jacket just to sit in the house and getting him to part company with them is nigh on impossible.
I also wonder about the drugs he has now been on aricept for over two years. I have read that after two years it probably has little effect and I some times wonder now if it is cruel to prolong this dreadful stage of semi awarness because those times when he is aware of his world falling apart cause him dreadful frustration and anger and I find that these are some of our saddest and hardest moments to deal with. I know that in two minutes he will have forgotten the outbursts but I am often left phsyically and emotionally drained.