Hello,
My dad has been recently diagnosed with posterior cortical atrophy ( rare form of ad- affects vision and short term memory- dad will eventually be blind) at the age of 58.
He spent a month in Queens Square, London during which his partner of a number of years visited him once and subsequently gave him an ultimatum on thier relationship. Dad left hospital and moved in with my husband and I with literally the clothes he was standing in. That was two weeks ago. I have not been able to work since the beginning of april and not sure when I can go back as the social services are achingly slow. I am an only child and his care and wellbeing is my responsibility as his brothers and sisters cannot really help.
On a day to day basis life is difficult( dad needs 24 hour care) - my dad is very intelligent but has problems with short term memory. He does not have any insight into his illness and seems quite unconcerned by anybody elses needs or concerns. My husband had to visit his own dad recently and dad spent the weekend complaining about the radio, tv any food i prepared. I felt like getting into the car and driving as far away as possible.I feel so tired and trapped its as if its a 24 hour, 7 day a week drudge. I feel terrible admitting this but our lives have completely been turned upside down. The only time I have to myself is when I go to the loo.
Does anybody else feel this way? The bottom line is that I am dealing with the unknown.
I am having a good day today and write this with out crying.....
My dad has been recently diagnosed with posterior cortical atrophy ( rare form of ad- affects vision and short term memory- dad will eventually be blind) at the age of 58.
He spent a month in Queens Square, London during which his partner of a number of years visited him once and subsequently gave him an ultimatum on thier relationship. Dad left hospital and moved in with my husband and I with literally the clothes he was standing in. That was two weeks ago. I have not been able to work since the beginning of april and not sure when I can go back as the social services are achingly slow. I am an only child and his care and wellbeing is my responsibility as his brothers and sisters cannot really help.
On a day to day basis life is difficult( dad needs 24 hour care) - my dad is very intelligent but has problems with short term memory. He does not have any insight into his illness and seems quite unconcerned by anybody elses needs or concerns. My husband had to visit his own dad recently and dad spent the weekend complaining about the radio, tv any food i prepared. I felt like getting into the car and driving as far away as possible.I feel so tired and trapped its as if its a 24 hour, 7 day a week drudge. I feel terrible admitting this but our lives have completely been turned upside down. The only time I have to myself is when I go to the loo.
Does anybody else feel this way? The bottom line is that I am dealing with the unknown.
I am having a good day today and write this with out crying.....