Mum was diagnosed with Denentia last June, everything was fine until Christmas day when I found her at the bottom of the stairs half naked, and very confused. To cut a Very long story short, mum has been in four different hospitals since then and is now in a lovely mental health unit. All was going well until a couple of weeks ago when she started refusing food and fluids. With a fair amount of coaxing she did start again but this has happened twice since and this time she is not responding well. We haven't been able to visit mum because of the virus, but yesterday we were called to the hospital as mum has deteriorated rapidly, very low blood pressure and temp, and is sleeping constantly.
The Dr told us that hospice care have been contacted and will now only be giving palliative care to keep her comfortable. We were allowed to sit with her thankfully, and have been told we can visit one at a time now. I asked if they thought this was the beginning of the end and if mum could come home. The Dr said yes and they would check. This is where my heartbreak begins.
The hospital rang this morning to say that she could come home and would make arrangements. My two sisters though (there are three of us) don't want mum to come home and I suppose I should go with the majority. But mum would hate to die in hospital, she always made us promise not to put her in a nursing home, and I feel so guilty that this is what is going to happen.
My head says she is probably better off where she is, but my heart is breaking, I want her to be comfortable in her own home, surrounded by people she loves, but this cant happen either because of the one carer rule. Sorry to waffle on, but I don't have anyone else to talk to, I would usually confide in my sisters but that's not an option now.
The Dr told us that hospice care have been contacted and will now only be giving palliative care to keep her comfortable. We were allowed to sit with her thankfully, and have been told we can visit one at a time now. I asked if they thought this was the beginning of the end and if mum could come home. The Dr said yes and they would check. This is where my heartbreak begins.
The hospital rang this morning to say that she could come home and would make arrangements. My two sisters though (there are three of us) don't want mum to come home and I suppose I should go with the majority. But mum would hate to die in hospital, she always made us promise not to put her in a nursing home, and I feel so guilty that this is what is going to happen.
My head says she is probably better off where she is, but my heart is breaking, I want her to be comfortable in her own home, surrounded by people she loves, but this cant happen either because of the one carer rule. Sorry to waffle on, but I don't have anyone else to talk to, I would usually confide in my sisters but that's not an option now.