Hello to all, (forgive me for this been long winded )
I am new to this forum but have been reading many of the posts.
I am 48 years young and turned to my GP after a few years of not been myself . So he has been on this journey with me from the beggining and has seen the changes in me become worse over time. He believes I have Alzheimer’s and sent me to a neurologist who says I’m to young to have it and then had me do a test with another person in which he asked me questions and said things I had to remember and to drawl a clock which I have been able to do my whole life into he asked me. I burst into tears because I had forgotten how to do it. I didn’t remember barley any of the things he asked me to repeat and it was just not a good experience. (I don’t have the results from that as yet but I’m sure it wasn’t good ?)
And then he sent me off for a mri a few months ago which came back clear except for the report said I have a basal ganglia calcification (I have no idea what that means) and it also said a possible iron disease.
I haven’t spoken to him yet about that mri or the tests I had to do because I just keep forgetting to make that damn appointment to go back and see him. (My daughter is going to make the app for me tomorrow ❤️)
So that’s the medical side . Now to about myself.
Slowly I have gotten worse with everything not just my memory. I forget everything and I mean everything in minutes from what I just talked about to what day it is . I am always stopping in conversation because I cannot think of a word to use , I’m literally forgetting words ? and this makes me feel so degraded and so stupid and I don’t like been this way at a. Infact it’s not me, this is not who I was , I feel like someone else has entered my mind and is taking over and it’s the most scary feeling and the most devastating feeling . My young children (I have 8 children , four adult ones and four young ones ) but my children are constantly helping me with words , when I say the wrong things which is every time I talk. They shouldn’t have to be doing this for their mother .
I say things that I completely don’t remember saying . I’m forgetting how to add numbers together and that’s something I was always very quick at doing , now I struggle if I can even do it .
I can watch a tv show and by the next day it’s al forgotten and I’m latch it again and not remember a damn thing and my 12 year old will say mum we watched that last night together .
I had to give up the course of my dreams that I waited to do till my youngest turned 9 and I had to give it up . I was starting to become a (omg I can’t remember what it’s called ??, well a counselled but I don’t remember the name of it I’m sorry , and well I just want r able to remember the things I was reading and I wasn’t taking it all in like I should of been and I knew then something was REALLY wrong with me so I was so heart broken I waited 30 years and then didn’t get to become a counselled after all that time .
I’m losing myself , I’m forget isn’t what my grandchild names are and calling them other random names and they live with me ?
I’m feel more and more I’m been oh she’s to the background. While this imposter takes over my brain and is taking away my once amazing memory . And yet I am starting to remember things from my past way better then ever before . It’s just so strange .
I don’t know if this sounds like Alzheimer’s but my doctor said he is pretty sure it’s early onset . But the neuro practically scoffed at the thought of it been that . But I know this ain’t me and I’m deteriorating slowly. It’s not MY mind anymore and I’m losing myself more and more .
I’m sorry for the long rant if you got this far , but I feel so alone and no one understands how isolating this feels so I found you all in this forum.
Does anyone know if any of this is a Alzheimer’s or dementia signs? Please be honest with me
Love and light
Nonnajay ?
I am new to this forum but have been reading many of the posts.
I am 48 years young and turned to my GP after a few years of not been myself . So he has been on this journey with me from the beggining and has seen the changes in me become worse over time. He believes I have Alzheimer’s and sent me to a neurologist who says I’m to young to have it and then had me do a test with another person in which he asked me questions and said things I had to remember and to drawl a clock which I have been able to do my whole life into he asked me. I burst into tears because I had forgotten how to do it. I didn’t remember barley any of the things he asked me to repeat and it was just not a good experience. (I don’t have the results from that as yet but I’m sure it wasn’t good ?)
And then he sent me off for a mri a few months ago which came back clear except for the report said I have a basal ganglia calcification (I have no idea what that means) and it also said a possible iron disease.
I haven’t spoken to him yet about that mri or the tests I had to do because I just keep forgetting to make that damn appointment to go back and see him. (My daughter is going to make the app for me tomorrow ❤️)
So that’s the medical side . Now to about myself.
Slowly I have gotten worse with everything not just my memory. I forget everything and I mean everything in minutes from what I just talked about to what day it is . I am always stopping in conversation because I cannot think of a word to use , I’m literally forgetting words ? and this makes me feel so degraded and so stupid and I don’t like been this way at a. Infact it’s not me, this is not who I was , I feel like someone else has entered my mind and is taking over and it’s the most scary feeling and the most devastating feeling . My young children (I have 8 children , four adult ones and four young ones ) but my children are constantly helping me with words , when I say the wrong things which is every time I talk. They shouldn’t have to be doing this for their mother .
I say things that I completely don’t remember saying . I’m forgetting how to add numbers together and that’s something I was always very quick at doing , now I struggle if I can even do it .
I can watch a tv show and by the next day it’s al forgotten and I’m latch it again and not remember a damn thing and my 12 year old will say mum we watched that last night together .
I had to give up the course of my dreams that I waited to do till my youngest turned 9 and I had to give it up . I was starting to become a (omg I can’t remember what it’s called ??, well a counselled but I don’t remember the name of it I’m sorry , and well I just want r able to remember the things I was reading and I wasn’t taking it all in like I should of been and I knew then something was REALLY wrong with me so I was so heart broken I waited 30 years and then didn’t get to become a counselled after all that time .
I’m losing myself , I’m forget isn’t what my grandchild names are and calling them other random names and they live with me ?
I’m feel more and more I’m been oh she’s to the background. While this imposter takes over my brain and is taking away my once amazing memory . And yet I am starting to remember things from my past way better then ever before . It’s just so strange .
I don’t know if this sounds like Alzheimer’s but my doctor said he is pretty sure it’s early onset . But the neuro practically scoffed at the thought of it been that . But I know this ain’t me and I’m deteriorating slowly. It’s not MY mind anymore and I’m losing myself more and more .
I’m sorry for the long rant if you got this far , but I feel so alone and no one understands how isolating this feels so I found you all in this forum.
Does anyone know if any of this is a Alzheimer’s or dementia signs? Please be honest with me
Love and light
Nonnajay ?