Hi, my name is Jo i registered afew days ago but have not yet posted because i have been reading everyones terrible stories.
My Mum died 3 years ago from Alzheimers, she had the genetic form, known as Familial Alzheimers. I am 24, i have a sister who is 28 and a brother who is just coming up to 23. My Mum was 43 when she died and had been suffering from the affects since she was about 36.
When i was 17 i left education to take care of her - my Dad did the whole 'if i bury my head in the sand it'll go away' trick. This meant that she was not diagnosed for 6 months after this. Even then it took several letters from my aunt and a change of doctor before they even did a brain scan!
I took care of her for a year, but she became so agressive with me that it was difficult to be in the same room for any period of time. Luckily she went to a home which catered for young people with dementia, which was also 5 minutes away in the car. After another 12 months she became too aggressive to remain there and had to be admitted to a Psychiatric ward - which was not pleasant!
The staff were brilliant though and we got the best bits from her. When she died we were all there with her - the nurses were sobbing with us! It has been a very long and painful period but as time goes by the bad bits are harder to remember!
My Mum died 3 years ago from Alzheimers, she had the genetic form, known as Familial Alzheimers. I am 24, i have a sister who is 28 and a brother who is just coming up to 23. My Mum was 43 when she died and had been suffering from the affects since she was about 36.
When i was 17 i left education to take care of her - my Dad did the whole 'if i bury my head in the sand it'll go away' trick. This meant that she was not diagnosed for 6 months after this. Even then it took several letters from my aunt and a change of doctor before they even did a brain scan!
I took care of her for a year, but she became so agressive with me that it was difficult to be in the same room for any period of time. Luckily she went to a home which catered for young people with dementia, which was also 5 minutes away in the car. After another 12 months she became too aggressive to remain there and had to be admitted to a Psychiatric ward - which was not pleasant!
The staff were brilliant though and we got the best bits from her. When she died we were all there with her - the nurses were sobbing with us! It has been a very long and painful period but as time goes by the bad bits are harder to remember!