Mum has been sectioned for some time - Lewy Bodies Dementia - and now the facility are trying to discharge her

Kithe

New member
Hi all, looking for some guidance here, feels like we have nowhere to turn for help.

Dad has been looking after mum for a little over 4 years in their own home.

Dad has no problem doing the shopping, cleaning etc (he is 80 soon) Previously, we had carers 3 times per day, paid privately.

After the (4 years long) usual accusations of theft and dad having an affair, mum finally managed to climb out of a window in the middle of the night and went to some neighbours and accused my dad of abuse.

The Police were called and she was sectioned and placed in a secure facility.

Since then the police have spoken with the neighbours to ascertain if here was any truth to the allegations, which is incredibly stressful for my dad.

Now the facility that she is in have been treating her with a wonder drug and the hallucinations have somewhat levelled out.

But now they are implying that mum should or could be discharged into my dads care, back at home.

Dad is incredibly stressed out with this as its clear that mum would require 24 hour care and he can't be awake for 24 hours a day.

The angle from the facility doctors is that specialist carers could be provided and mum is almost fit to return home.

We tried carers before, and it wasn't a help at all, mum would tell them to go away.

My understanding is that after a patient is sectioned, the onus is on the care facility to provide an adequate care package.

Dad simply cannot cope with mum at home, even with carers it would make him a prisoner in his own home.

The facility has started talking about discharging mum into the hands of Dad which he simply cannot cope with.

Dad called mum's GP and they just gave him a phone number to call for assistance, I think this is incredibly unfair.

For reference both of my parents have paid into the NHS their entire lives and have always worked, never claimed anything.

My dad and myself (son) both believe that Mum can't be managed at home, where do we go from here?
 

kindred

Registered User
Hi all, looking for some guidance here, feels like we have nowhere to turn for help.

Dad has been looking after mum for a little over 4 years in their own home.

Dad has no problem doing the shopping, cleaning etc (he is 80 soon) Previously, we had carers 3 times per day, paid privately.

After the (4 years long) usual accusations of theft and dad having an affair, mum finally managed to climb out of a window in the middle of the night and went to some neighbours and accused my dad of abuse.

The Police were called and she was sectioned and placed in a secure facility.

Since then the police have spoken with the neighbours to ascertain if here was any truth to the allegations, which is incredibly stressful for my dad.

Now the facility that she is in have been treating her with a wonder drug and the hallucinations have somewhat levelled out.

But now they are implying that mum should or could be discharged into my dads care, back at home.

Dad is incredibly stressed out with this as its clear that mum would require 24 hour care and he can't be awake for 24 hours a day.

The angle from the facility doctors is that specialist carers could be provided and mum is almost fit to return home.

We tried carers before, and it wasn't a help at all, mum would tell them to go away.

My understanding is that after a patient is sectioned, the onus is on the care facility to provide an adequate care package.

Dad simply cannot cope with mum at home, even with carers it would make him a prisoner in his own home.

The facility has started talking about discharging mum into the hands of Dad which he simply cannot cope with.

Dad called mum's GP and they just gave him a phone number to call for assistance, I think this is incredibly unfair.

For reference both of my parents have paid into the NHS their entire lives and have always worked, never claimed anything.

My dad and myself (son) both believe that Mum can't be managed at home, where do we go from here?
Please make it clear that you can’t accept your mum back, even with a care package. She is a vulnerable person and they must arrange a placement for her. You will have to be firm and refuse all the package offers.
All my sympathy.
 

JanBWiltshire

Registered User
@Kithe I feel for you as we have a very similar situation with my mother, who ended up hitting my father and all sorts of weird accusations. She is still in hospital and when they said they might release her home with two half hour care visits per day, I stated I wouldn’t be facilitating that and they would need to take the responsibility of taking her home and oversee it plus provide a written statement that they felt my mother was going to be safe in the care of my 94 year old father who can’t walk and has memory problems. That seemed to centre their thought process and are now rethinking things.

Too often they take it for granted a caring and involved son or daughter will mop up the problems but I have found my mother is just too much to handle and I won’t do it. My father is easy in comparison as he is happy to have carers in and be showered etc, My mother has been so difficult to deal with and at times I swear she has been possessed by the devil!

Good luck and stand your ground - ask for a written statement and I’m sure you will find they won’t be prepared to do it. Keep us posted!
 

JanBWiltshire

Registered User
Meant to add…..your father also has to be considered so “mental health” is a watch word to add to the equation, on his behalf.
 

Grannie G

Volunteer Moderator
Your dad cannot be forced to resume care for your mum @Kithe. No matter how effective her treatment has been the events leading up to her being sectioned will have sorely taken its toll on your dad and affected his physical and mental health.
 

Sarasa

Volunteer Host
I think you need to refuse to have your mother home, horrible though that sounds. Have you spoken to the hospital's social workers as it sounds like you need a proper best interests meeting before she is discharged.
It might be worth talking to the Dementia Support Line on 0333 150 3456 or email dementia.connect@alzheimers.org.uk , about how you can plan the next steps.
 

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