Hi all
My wonderful dad died Christmas Eve of, so his death cert says 'pneumonia' aged 72.
He was diagnosed with Alzheimers 2 and a bit years ago. However, a long time before he died he showed all the signs of lewy bodies. In fact, he maintained awareness of who we were and every stage of his illness right to the end. It was the worst thing I have ever seen.
I am now angry. Why did the memory clinic simply 'mis' diagnose him then say 'see you every 6 months'. No support. No advice for us with how to deal with it all. Even weeks before he died when my dad couldn't hardly walk or speak much anymore he was made to sit through a 'memory test' which made him howl. How heart-breaking.
I feel angry that no medical professional seemed to know or care what was wrong with my dad or give us his family any consideration.
Even the hospital tried to re-susitate my dad as his heart began to pack up. Why would they try and keep him suffering?
Why was he treated like this when people with cancer seem to get every bit of sympathy and support going yet someone with a disease that eats away the brain slowly but surely till the gruelling end is not even known about? Or rather, people don't seem to have heard of it?
They would if they had a parent with it, that's for sure.
I think I will write it all down and send it to a) the doctors b) the hospital c) the government d) the memory clinic
x
My wonderful dad died Christmas Eve of, so his death cert says 'pneumonia' aged 72.
He was diagnosed with Alzheimers 2 and a bit years ago. However, a long time before he died he showed all the signs of lewy bodies. In fact, he maintained awareness of who we were and every stage of his illness right to the end. It was the worst thing I have ever seen.
I am now angry. Why did the memory clinic simply 'mis' diagnose him then say 'see you every 6 months'. No support. No advice for us with how to deal with it all. Even weeks before he died when my dad couldn't hardly walk or speak much anymore he was made to sit through a 'memory test' which made him howl. How heart-breaking.
I feel angry that no medical professional seemed to know or care what was wrong with my dad or give us his family any consideration.
Even the hospital tried to re-susitate my dad as his heart began to pack up. Why would they try and keep him suffering?
Why was he treated like this when people with cancer seem to get every bit of sympathy and support going yet someone with a disease that eats away the brain slowly but surely till the gruelling end is not even known about? Or rather, people don't seem to have heard of it?
They would if they had a parent with it, that's for sure.
I think I will write it all down and send it to a) the doctors b) the hospital c) the government d) the memory clinic
x