memory loss and confusion plus alcoholism

eebahgum

Registered User
Aug 27, 2014
12
0
My Dad is an alcoholic. He turned to alcohol to deal with the loss of my mum nearly 3 years ago.

Alcohol makes him lose his words, fail to understand anything said to him and sometimes makes him aggressive.
When he's not drinking he still has some level of confusion and words are a bit hit and miss. He struggles to remember names - even his grandchildren that he sees several times a week, forgets to eat, forgets his pills or takes them on the wrong day (even in a dosset box).

We worked hard to get him into residential detox so his cognitive functions could be assessed whilst he was sober. Unfortunately within a week of discharge from hospital he was back to drinking again.

The GP has said that whilst he is drinking she cannot refer him to the memory clinic.
We're considering all sorts of schemes to get him to stop drinking so we can get him assessed - from taking his bank cards off him so he can't buy booze, to putting him in residential care on a temporary basis to allow the tests to be done although I have no idea whether they need to be done over an long period or if we can do just a one off test.

Has anyone else been in a similar boat?

When left to his own devices he eats 2 bowls of breakfast cereal a day, stares at the wall. He frequently has no idea if its morning or evening and only goes to the shop to buy more alcohol.

In the meantime, he has a carer who comes in every lunchtime to cook him a proper meal, chat to him and check that he has taken his medication. She also cleans, helps with laundry, makes him change his bed etc.

We phone him every morning to check he is up, dressed, has had breakfast and has taken his pills which are in a dosset box. Ditto in the evening although one of us frequently ends up going over to cook him something because he can't use the cooker and can't or won't make a sandwich/use the microwave or he's failed to do the shopping that he and the carer have agreed. We both work and we have 2 small children.

I'm pretty sure he has dementia but without a diagnosis or any chance of getting one, I'm feeling pretty isolated. I'd love a label to hang on his unwillingness to do anything and his inability to engage meaningfully in any kind of relationship.
I'm not sure the local alzheimers society can do much to support us; he technically isn't diagnosed but all of their events take place during the working day so are inaccessible to us. I've sent them an e-mail to see if they can help.m

An age UK volunteer phones him up every week although apparently the conversations are very short and the other person can't wait to get off the phone (but who knows whether this is an accurate reflection of events).

I have downloaded the compassionate communication guide which I am happy to try when he's sober, but I can't be bothered when he's drunk; I don't want to reward destructive behaviour.

We're going to try and get him a clock which shows day and tine, and ideally am/pm to help him manage his meds but I'm very tempted to get him one of the pill dispensers which text you if he's not taken them and then locks them so they can't be taken, especially since sometime today he took tomorrow mornings drugs... and the next delivery is due tomorrow so he's short of pills for breakfast.

Is there anything else I should be doing to support him?
 

Beate

Registered User
May 21, 2014
12,179
0
London
This sounds a lot like Korsakoff syndrome, and unfortunately yes, your Dad needs to be sober for a few weeks first before tests can be done:
http://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=98
I have no idea how to get anyone to stop drinking, it must be very hard.

But I don't see why he can't have an assessment by Social Services in the meantime? They could assess whether more help is available in terms of carers or maybe telecare etc. You're doing a lot of great things already but also, you could apply for Attendance Allowance for him, it's not means-tested (charities like Age UK can help you fill it in) and then he can also apply for Council Tax reduction ( if he lives alone that should mean no council tax at all).

Lots of luck!
 

eebahgum

Registered User
Aug 27, 2014
12
0
This sounds a lot like Korsakoff syndrome, and unfortunately yes, your Dad needs to be sober for a few weeks first before tests can be done:
[
I have no idea how to get anyone to stop drinking, it must be very hard.

But I don't see why he can't have an assessment by Social Services in the meantime? They could assess whether more help is available in terms of carers or maybe telecare etc. You're doing a lot of great things already but also, you could apply for Attendance Allowance for him, it's not means-tested (charities like Age UK can help you fill it in) and then he can also apply for Council Tax reduction ( if he lives alone that should mean no council tax at all).

Lots of luck!

That's really interesting. Thank you for flagging that. It's all such a muddle. Somewhere in the mess of alcohol, depression, anxiety, grief and confusion is a sad and scared old man but its impossible to unpick the issues and get him any kind of diagnosis or support because it's all dissolved in whisky.

How do I get to social services? DO I just ring the adult social services team directly or do I need a referral?
 

Beate

Registered User
May 21, 2014
12,179
0
London
Nah, just ring them up. Stress how vulnerable he is and that he needs more help. You should also ask for a carers assessment for yourself and whoever else cares for him.
 

LYN T

Registered User
Aug 30, 2012
6,958
0
Brixham Devon
Nah, just ring them up. Stress how vulnerable he is and that he needs more help. You should also ask for a carers assessment for yourself and whoever else cares for him.

Agreed-phone them direct. If they say you need to go through the GP then you haven't a choice-emphasise that he is a vulnerable person.

Let us know how you get on if you can

Lyn T XX
 

loveahug

Registered User
Nov 28, 2012
1,071
0
Moved to Leicester
Sorry, didn't want to read and run but will keep it brief; could the carers administer meds? My mum is 'assisted' with hers but would take them all or none if left to her own devices! This dratted disease is awful but mixed in with alcoholism leaves me full of admiration.

Best wishes x
 

eebahgum

Registered User
Aug 27, 2014
12
0
Thank you all. I will phone social services in the morning.

The last couple of days have seen an increase in his drinking and a deterioration in his communication skills.
He is talking more than he has for ages but the words are random and its fluent gibberish. Some of it may be ancient greek, maybe latin, certainly some random french words but a lot of gibberish.

yesterdays problem was apparently phone bills. He has too many of them and he can't remember the numbers. he has a landline and 2 mobiles so this was plausible until I realised he meant he'd forgotten the pin number for his bank card. Obviously!

Today he was talking in support of belly ponds. You know. Those belly ponds with fat in the middle and diet around the outside? Other people know them as ready meals.

he's phoned the bank. He said he'd been in recently - but he's never left the village unaccompanied because he won't use the bus - but anyway he wanted to know if he was paying the right amount for things so he has an appointment. Soon. At the bank, or maybe at home or maybe on the phone. maybe next week. maybe next year. To discuss the important stuff. With the lovely lady who makes him feel as though he talks sense.

He'd not eaten. If I was nice I'd have taken my tea over there and cooked for gim properly but I was a mean and nasty daughter and I made him toast before coming over here to cook my salmon and veg.

He says he's coming walking tomorrow. He thinks its a lovely new idea (although he's been before) and once I'd explained 3 times when he needed to be up I left. My first child free, work free lie in for 4 years is going to be interrupted by having to phone him at 8 to tell him to get up if he wants to come, for him to ask me what we're going to, why and to tell me he feels nauseous and has a head ache and won't come (aka a hang over).

I wonder if it would be better if he was sober or whether this is as good as it gets now.

oh man. I wish my mum was still alive. Off to find a sense of humour because that is the only way I'm going to survive this...
 

garnuft

Registered User
Sep 7, 2012
6,585
0
Off to find a sense of humour because that is the only way I'm going to survive this

Well it's not the only way but it's the best chance you have of getting out of the skirmish with your scalp intact. It'll serve you well. x
 

marsbar

Registered User
Aug 19, 2014
10
0
Alcoholism and alzheimers... !

I am a recovering alcoholic myself and can empathise with the issues you are facing. My mom has also been diagnosed with alzheimers and is also drinking heavily now. You are faced with a mass of confusion with either illness but combined it's a nightmare to make any sort of headway. The alcoholism is not treatable by medication or by "detox" methods and the only way is complete abstinence and the AA programme of recovery ( in my opinion! ) That's such a hard concept to sell to someone who wants to stop the pain of losing a loved one and the confusion of alzheimers in combination. The depression and excessive alcohol consumption is an never ending cycle as they both " feed" on each other... more drink leads to more depression etc etc. We have taken to watering down mom's brandy on the advice of the doctor and alz specialist and she hasn't noticed at all. Not the ideal situation but eases the situation a bit. On advice we had to stop her taking the Aricept medication as the swigging of brandy to help swallow the tablet wasn't the best idea mom had ever had ! almost funny to think of it now. We are just having to wait now till the situation gets worse for it to get better and enjoy whatever good days mom has. Her appetite for food has stopped and we are just thankful for any meals she wants. Her taste has changed so if she just wants cake then that's what she has. her memory of people and places is getting worse every day but we try to not challenge her and don't ask "open" questions anymore. Best of luck and if I can help in any way with either condition it would be my priviledge to share my experience with you. Just take it one day at a time as we alkies say !
 

cheese77

Registered User
Jun 10, 2013
7
0
Although simple bits of technology may not all work i think a few simple things are worth a try, certainly speak to social care about an assessment and a link into their Telecare service; all authorities have some form of Telecare service, some better than others.
A day/night clock as you mentioned, there is one to look at on the Clairmontplc website
A photo phone - where you press the photo of a person and it rings their number, or something like a binatone dialler that plugs into a phone which you can find on eBay
Pill dispenser from company called pivotell
There are other good sites like myageingparent.com or livingmadeeasy.org.uk
 

eebahgum

Registered User
Aug 27, 2014
12
0
Thanks for your replies, all. They are much appreciated.

We have some progress.

I phoned social services who were very sympathetic but not much help. They gave me a list of other people to call including voluntary services.
I have phoned the comm psych nurse who was on leave (she's been on leave every time I've tried to call) but she's not phoned me back.
Dad has forgotten his pin number so we're looking after his bank cards for him.
We have set him up with an account in the (unlicensed) village shop so he can purchase provisions and I will pay the account off each month.
He is having milk delivered.
I have hung up most of the many, many pictures he brought up with him and has refused to unwrap.
He is due at the memory clinic next Friday.

On the other hand, he saw his alcohol counsellor, was really angry that we'd stolen his cards and stopped him buying booze, and said he was perfectly happy with the amount he was drinking and saw no reason to change it.
This resulted in the counsellor phoning me, pointing out that witholding dad's cards was illegal and telling me that if dad wanted to carry on drinking then the counsellor really couldn't carry on seeing him since his remit is to help people reduce their alcohol consumption... Dad and I are going to see him together next week so dad can't play me and the counsellor off against each other.
Dad has eaten 2 meals as far as I can tell in the last 9 days. he refused to get out of bed to come for Sunday lunch. Infact I don't think he's got washed or dressed since Saturday when we did persuade him to come for tea.

We're still having the daily conversation about having to get up, get washed and dressed and do some kind of activity. It's news to him every time.
he doesn't understand why he shouldn't drink.

Twice today we have explained that the meeting with the counsellor - at the office rather than a home visit (because if I have to take the time off work then we might as well go there which means the counsellor can probably see someone else rather than spending his afternoon travelling to dad's) - is not because dad is terminally ill.

But if he's going to carry on drinking and have no words, and wet himself, and not eat through his own choice of actions then I'm not sure how much I can physically support him.

I have no idea how I can not support him and watch him go into terminal decline either.

I'm just hoping that we get some kind of diagnosis from the memory clinic and that we can get some professional input. So far all the professions have said is that I'm in a very difficult situation and they have a lot of sympathy for me. Which is nice but, when all is said and done, not terribly helpful.
 

garnuft

Registered User
Sep 7, 2012
6,585
0
That's the thing.

You have to make the decisions you can live with.

Can you support your Dad even in the face of his choices?

You can't change his life, that's for sure.

I know it hurts. I had to watch my darling brother die because he couldn't stop drinking.

He lost his wife and children and he loved them deeply and I loved him too.

Supported him and helped him, in an out of what would now be called re-hab but at the time was called a mental hospital.

Back and forth he went. He drank even while taking alcohol abuse tablets.

He was well-loved.

He still drifted away when he was 47.

My advice? Don't try to change him. Do as he does.

What you want.

Support him, even though it breaks your heart...and it probs already has done, a million times...keep on.

Or keep an eye on things from a distance.

Or walk away.

These are your choices. Your life.

It's a rotten choice but when you make it, do the best you can with the choice.

Don't keep second guessing yourself.

It is what it is.

And it's hard. x
 

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