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lewy bdy dementia

phil47

New member
Jan 30, 2022
4
0
hi how do i go about getting a diagnosis for lewy body dementia as i believe my mother in law has all the symptoms and is only been treated as having dementia she regulaly refuses personal care and hits people she has also pushed over another resident over in the care home i just want her to get treated with the right treatment and hopefully this will ease her anxiety
 

canary

Registered User
Feb 25, 2014
18,427
0
South coast
Hello @phil47 and welcome to Talking Point

Im afraid that there is no treatment specifically for Lewey Body Dementia (LBD). There is medication to help with symptoms, but this is the same for all types of dementia,
What does the care home say about her challenging behaviour?
 

Grannie G

Volunteer Moderator
Apr 3, 2006
76,043
0
Kent
Welcome to Dementia Talking Point @phil47

You could try for a second opinion but as @canary said there is no treatment. A diagnosis however may enable more understanding of your mother in law`s behaviours.
 

phil47

New member
Jan 30, 2022
4
0
Welcome to Dementia Talking Point @phil47

Do you think you could keep a diary of your mother in law`s behaviours for a couple of weeks? If so and then take it to her GP in confidence, although they may not discuss her with you, they will listen and take note and decide what action to take.
hi Granie G my partner and her sisters have power of attorney so maybe a dr would listen to them im learning there is so many forms of demetia after research im thinking she has lewy body dementia the care home has admitted they can no longer care for her needs
 

phil47

New member
Jan 30, 2022
4
0
Hello @phil47 and welcome to Talking Point

Im afraid that there is no treatment specifically for Lewey Body Dementia (LBD). There is medication to help with symptoms, but this is the same for all types of dementia,
What does the care home say about her challenging behaviour?
the care home just say they cant meet her needs anymore.She now has 1 to 1 care due to a incident which happened at the home now chlt have got involved and low dose of medication[ sertrline] has been prescribed
 

Thethirdmrsc

Registered User
Apr 4, 2018
654
0
My husband was diagnosed with Alzheimer’s 5 years ago, but it was only last year after he was detained in hospital, that he was diagnosed with also having LBD. Looking back I can see all the symptoms but it is only with medication that it has been tempered. I would have thought that the home would maybe refer her for a meds review. My husband is now in an EMI unit.
 

phil47

New member
Jan 30, 2022
4
0
My husband was diagnosed with Alzheimer’s 5 years ago, but it was only last year after he was detained in hospital, that he was diagnosed with also having LBD. Looking back I can see all the symptoms but it is only with medication that it has been tempered. I would have thought that the home would maybe refer her for a meds review. My husband is now in an EMI unit.
hi how did they come to diagnose the LBD with the symptoms been the same as alzeimers desease ? we are just looking to get a diagnosis
 

JHA

Registered User
Aug 7, 2021
630
0
My mom has LBD and was diagnosed through the Memory Assessment Service last year. The diagnosis was given after doing assessments with her and talking to me explaining what she had been going through.

Until just after diagnosis my mom was coping at home and was relatively self sufficient but after a period of continuous hallucinations she was admitted to hospital with a suspected infection then discharged to a care home for further assessment. Unfortunately SS deemed she could go home with a care package and home she went. Once she was home she was unwilling to accept help from the carers and once she was expected to pay for them she declined there assistance totally leaving everything to me. I would visit once a day in the morning and then ring her at tea time and this lasted from September until nearly Christmas when she started to wander out of the house in the middle of the night.

I spent 8 days with her (sleeping on her sofa at night and taking her home during the day) until I admitted defeat and sorted a respite bed out in a care home - she is still there with a view to staying long term but things have not been easy. She does not want to be in the care home, she has lashed out at a carer, tried to put a fire extinguisher through the door, pressed the fire alarm, took a blunt knife out of the kitchen which resulted in the police being called, pushed a resident when they were in her room to get them to leave, hit another resident with a pop bottle when they went to go into her room the list is endless. Thankfully the care home are trying to get her medication sorted - when she went in she was on Rivastigmine and lorazepam had been prescribed but getting her to take it was tricky. They are now liaising with mental health to get the lorazepam split into two doses and approval for an additional med. I did ask if she was at risk of being asked to leave but was reassured that they are trying everything to get her to settle and it is early days yet.
 

Thethirdmrsc

Registered User
Apr 4, 2018
654
0
hi how did they come to diagnose the LBD with the symptoms been the same as alzeimers desease ? we are just looking to get a diagnosis
It was all in the presentation. He looked in mirrors and saw people, so took the mirrors off the wall, shouted at people who weren’t there, had tremors, didn’t sleep, pacing constantly, wanting out of the car while I was driving, and this was all on a daily basis. It wasn’t until he was detained, because I couldn’t cope, especially with the verbal aggression. He was taken to a mental health unit, and was diagnosed by the Dr. He was taken off galantamine, and given mertazapine, and melatonin, and also diazepam on a regular basis. He is a lot calmer now, and in a care home.
 

JC51

Registered User
Jan 5, 2021
257
0
My wife has mixed dementia, Alzheimers and LBD. The LBD was diagnosed after a radio active brain scan, where they inject a radio active substance into an arm, you then have to wait for two hours before the scan is done.
 

Andbreathe

Registered User
Dec 17, 2021
40
0
Uk
My dad was initially diagnosed with LBD by the memory clinic over the telephone during Covid and prescribed meantime. He improved dramatically and the consultant decided that in fact dad had had delerirum and not LBD after all. He gave a diagnosis of mild Alzheimer's instead. I would recommend going to the GP with your concerns and they should be able to refer your MIL to the memory clinic.
 

Dippidoo

New member
Jan 30, 2018
7
0
Solihull
hi how do i go about getting a diagnosis for lewy body dementia as i believe my mother in law has all the symptoms and is only been treated as having dementia she regulaly refuses personal care and hits people she has also pushed over another resident over in the care home i just want her to get treated with the right treatment and hopefully this will ease her anxiety
Hi there, my Mom has dementia wlb, she was diagnosed after having a MRI brain scan. There are “bits” floating around in the fluid around her brain. Lewey body causes mobility problems, which with mom are gradually getting worse. Mom was also having bouts of aggression but her dementia Doctor prescribed Quetiapine, which has helped a great deal. She has been taking Rivastigmine for about 4 years which helped in the early days. Upshot is, everyone is unique, but every dementia person needs to have a specialist doctor, then they can get a real diagnoses for her. I really hope you can sort it, it’s not fair on your Mom, as well as you to see this happening. Meanwhile, try to stay strong!
 

Dippidoo

New member
Jan 30, 2018
7
0
Solihull
Hi there, my Mom has dementia wlb, she was diagnosed after having a MRI brain scan. There are “bits” floating around in the fluid around her brain. Lewey body causes mobility problems, which with mom are gradually getting worse. Mom was also having bouts of aggression but her dementia Doctor prescribed Quetiapine, which has helped a great deal. She has been taking Rivastigmine for about 4 years which helped in the early days. Upshot is, everyone is unique, but every dementia person needs to have a specialist doctor, then they can get a real diagnoses for her. I really hope you can sort it, it’s not fair on your Mom, as well as you to see this happening. Meanwhile, try to stay strong!
Sorry, I meant mom in law.