Keen walker: finding the right care for active mother with Alzheimers

Garden2019

New member
Apr 29, 2019
4
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Dear all,

my mother was diagnosed with 'probable alzheimers' last November. She was living at home until three weeks ago, with carers coming in three times a day to try to feed her (hit and miss), she then was no longer locking herself in a night and was at risk of wandering and getting lost - every day she would catch the bus to a nearby town and return home but we were increasingly concerned about how long before she didn't.
We admitted her for some respite care at a local authority run care home with a specialist dementia unit and we now need to make a decision about whether to prolong her stay. She has been eating very well, and she has mostly, responded well, after an initial period of trying to climb over the gates to get out and being very unsettled. The staff are very kind. However, my mother is still very active, she can walk for miles and would benefit from being able to walk everyday, as she was used to. There is a nice garden at the home, but she cannot go out alone.
I would like to know what kind of activity programmes we can expect to find for people with dementia. She has only been admitted for respite care, so it is possible that the home will plan to set up more activities, but at the moment, there is nothing in place as far as I can tell to take residents out regularly.
My mother is in the Peak District, and moved there because of the environment. Although she is clearly getting very good care an attention where she is (for which we are so relieved and thankful), it seems too much of a radical change for her if she has no regular access to the thing she still really enjoys doing - walking. I live in the South but have two small children and can only visit at weekends/holidays.
Are there any care homes that people know of where there are structured activities for residents? Is this something we should continue to look for? My mother is certainly still keen to interact, be with her family, move and visit places, she just can't look after herself anymore and we aren't able to provide that kind of support for her.
Thank you in advance for reading. Any advice gratefully received.
 

nellbelles

Volunteer Host
Nov 6, 2008
9,843
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leicester
Hello @Garden2019 and a warm welcome to the forum..
I’m glad your mother is settled in the CH I wonder if you have had a word with the activity coordinator at the home?
The CH where my husband was took people out for short trips “lunches” etc but I doubt they would have the one to one staff for long walks. Have you considered a befriender?
I have put a link on for help on activities organised by the Alzheimer’s society so you can check out what may be available in your area.
https://www.alzheimers.org.uk/get-support/your-support-services/activity-groups
Now you have found us I hope you will continue to post
 

Helly68

Registered User
Mar 12, 2018
1,685
0
Sadly, my experience is that care homes aren't always good at this, and there are reasons.
My Mum's care home has weekly seated exercise to music (pretty gentle, given that many residents have limited mobility) but when my Mum was still able, if we wanted to go for a walk, I had to accompany her as the staff were too busy/not resourced to provide one to one activities like these. I am afraid this is a reality of residential care.
You may find homes with greater emphasis on independence and activity but I suspect there would be no getting away from an additional cost for these activities or that although they happen, they arent that frequent.
If she has friends who could visit and take her out, that might help. You might want to consider buying extra one-to-one support (e.g. a trained carer) who could accompany her on outings but this will be expensive and may not be easy to arrange.
Also try local voluntary groups near the home who may be able to help. Sadly my Mum isn't able to walk any more, so we don't have this need, but I have noticed that there isn't a great emphasis on physical activity in my Mum's home. It isn't easy as not all residents want to be active.
I hope you find a good solution....
 

Garden2019

New member
Apr 29, 2019
4
0
Thank you both very much for your replies!
I'm exploring the possibility of a neighbour going a couple of times a week, but want to make sure she wants to do it, and then see about setting something up more formally with her.
We would pay someone to do it, it's just hard to know where to start to look. Thank you NellBells for the link.There isn't much in her area, but I have found that there is an organisation that organises health walks - it's just about getting someone to go with her.
I will update on here if I find anything. Thank you again,
 

Sirena

Registered User
Feb 27, 2018
2,333
0
My mother moved to a care home a year ago and before that she used to go out for a daily walk with her carer, so I was worried she would miss doing that. However she doesn't really seem to have done so, her life is just different now - she has plenty of company and other activities within the CH. The staff do take residents on outings but it is very much dependent on weather (not too hot/cold/rainy etc) so it doesn't happen too often. But as others have said, the family or friends (or an independent carer) could take her out as often as they liked. If you need an independent carer you could contact a care agency in the area and ask if they would provide that service.
 

Garden2019

New member
Apr 29, 2019
4
0
My mother moved to a care home a year ago and before that she used to go out for a daily walk with her carer, so I was worried she would miss doing that. However she doesn't really seem to have done so, her life is just different now - she has plenty of company and other activities within the CH. The staff do take residents on outings but it is very much dependent on weather (not too hot/cold/rainy etc) so it doesn't happen too often. But as others have said, the family or friends (or an independent carer) could take her out as often as they liked. If you need an independent carer you could contact a care agency in the area and ask if they would provide that service.
Thank you very much Sirena.