I don't really know where to start, but start I must! What is really there for me in my every day life?
I must first say that I am in no way sorry for myself in spite of the Alzheimer's and now the P.C.A I would be far more concerned if it were one of my children that was affected.
I am so grateful for the love and care that I get from my daughter, but I have no one to talk to other than Joy, I can no longer cope with the phone.
The highlight of my life is if I can manage to go to the toilet once or if I'm lucky twice a week! Something most of you don't really want too know I'm sure, but Alzheimer's is not just about memory, it affects also all your bodily functionality and add in the P.C.A that also affects your sight,but in a quite insidious way by distorting what you can see some times in a frightening way and the truth is the part of your brain that enables you too see is dying and with no known timeline.
The good news, for me anyway, is that generally it allows you too retain much of your thought process, and you can still empathise with others and understand them. Speech is a different matter, so is trying to hand write anything or add up numbers or just deal with numbers in any meaningful way.
My predictive txt writes almost all of this for me now,otherwise it would just be a load of rubbish making no sense at all.
The memory clinic people are very kind see me once every six months mainly too see if I can still stay on the Ebixa. They say just call them if any problems!
At my age most of my friends have either died or have some kind of Dementia themselves any relatives live a long way away. A sad fact of life I'm afraid
I'm quite good at being on my own, but it would be nice now and then too have someone to talk to and with. Not about the disease but I have many interests and would be interested also in theirs. My speech may be slow and I forget what I want too say,but often get there in the end!
Is there a solution surely there must be, mus,not there!?❤️
I must first say that I am in no way sorry for myself in spite of the Alzheimer's and now the P.C.A I would be far more concerned if it were one of my children that was affected.
I am so grateful for the love and care that I get from my daughter, but I have no one to talk to other than Joy, I can no longer cope with the phone.
The highlight of my life is if I can manage to go to the toilet once or if I'm lucky twice a week! Something most of you don't really want too know I'm sure, but Alzheimer's is not just about memory, it affects also all your bodily functionality and add in the P.C.A that also affects your sight,but in a quite insidious way by distorting what you can see some times in a frightening way and the truth is the part of your brain that enables you too see is dying and with no known timeline.
The good news, for me anyway, is that generally it allows you too retain much of your thought process, and you can still empathise with others and understand them. Speech is a different matter, so is trying to hand write anything or add up numbers or just deal with numbers in any meaningful way.
My predictive txt writes almost all of this for me now,otherwise it would just be a load of rubbish making no sense at all.
The memory clinic people are very kind see me once every six months mainly too see if I can still stay on the Ebixa. They say just call them if any problems!
At my age most of my friends have either died or have some kind of Dementia themselves any relatives live a long way away. A sad fact of life I'm afraid
I'm quite good at being on my own, but it would be nice now and then too have someone to talk to and with. Not about the disease but I have many interests and would be interested also in theirs. My speech may be slow and I forget what I want too say,but often get there in the end!
Is there a solution surely there must be, mus,not there!?❤️
