Hi,
We are in the same situation, waiting for a diagnosis for my mother on 7th Dec. I'm going to push for a scan as possibly she may have vascular involvement and this can lead to faster progression.
What I would say is to try to relax for now and wait for the diagnosis appointment. I'm hoping for us, that following diagnosis, the professionals will guide us, as what to do next, as we haven't got a clue either and I'm hoping there is information available to help us cope.
Take care