I have a diary thread Alisongs Diary. My OH is 67, with diabetes type 1, Parkinsons and dementia. Dementia diagnosis only 10 months ago. Fading fast. Currently in hospital with diabetic issues that community nurses have not managed.
My huge issue is burnout as we got no help for many years (husband too complex, and multidisciplinary approach does not exist in NHS) First hospital stay in Spring. Limited help since now forthcoming, but not as promised or expected by discharge team. I still have to pick up whatever social services and medical workers don't do, drop, or won't do......Severely burnt out. All support, promises and callbacks stalled while OH in hospital. I've been promised, for me, GP and mental health callbacks and visits that haven't happened. Chased on surgery website. Nothing. Is there anywhere I can get at least a weekly callback to see how I'm! doing?
Sole carer, no children, my siblings family 100 miles away or abroad. OH only has one sibling who has recently become imvolved.
My huge issue is burnout as we got no help for many years (husband too complex, and multidisciplinary approach does not exist in NHS) First hospital stay in Spring. Limited help since now forthcoming, but not as promised or expected by discharge team. I still have to pick up whatever social services and medical workers don't do, drop, or won't do......Severely burnt out. All support, promises and callbacks stalled while OH in hospital. I've been promised, for me, GP and mental health callbacks and visits that haven't happened. Chased on surgery website. Nothing. Is there anywhere I can get at least a weekly callback to see how I'm! doing?
Sole carer, no children, my siblings family 100 miles away or abroad. OH only has one sibling who has recently become imvolved.
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