1. Expert Q&A: Protecting a person with dementia from financial abuse - Weds 26 June, 3:30-4:30 pm

    Financial abuse can have serious consequences for a person with dementia. Find out how to protect a person with dementia from financial abuse.

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I don't know what to do?

Discussion in 'I care for a person with dementia' started by U2swan, Mar 26, 2015.

  1. U2swan

    U2swan Registered User

    Mar 13, 2015
    17
    London
    My sister has Down's Syndrome with early onset dementia. I don't know how to start. Here I go.. She is refusing to eat and drink but to make this situation worse she has a throat infection and now is unable to keep food down. She already Vomited twice. I tried in vain to get her to drink water with sugar added. She gets very angry and aggressive.

    Earlier in the day, I did contact our GP and he said there is a bug going around just get her to drink to avoid dehydration. So I am back to square one.

    I just don't know what to do? Did I forget to mention she is also extremely stubborn.

    I fear she will end up in hospital.

    Help please...
     
  2. sistermillicent

    sistermillicent Registered User

    Jan 30, 2009
    2,951
    I suggest you try giving her anything you think she might be tempted by to drink, so if her favorite drink is coke for instance, give her that.
    Is it your gut feeling that things are not getting better? Is she still vomiting?
    you could try to ring 111, though I warn you it may be a longish wait and still end up at A/E.

    I am sorry, I can't help more, you know your sister and your knowledge of her normal self is what you can use to judge how she is now.
     
  3. U2swan

    U2swan Registered User

    Mar 13, 2015
    17
    London
    Thank you sistermillicent. My sister will not try any drink. She no longer touch cold drinks only coffee which I brought decaf. I will take your advice and try 111.
     
  4. Cat27

    Cat27 Volunteer Moderator

    Feb 27, 2015
    9,768
    Merseyside
    Could you try an ice lolly or some ice cream?
     
  5. Canadian Joanne

    Canadian Joanne Volunteer Moderator

    Apr 8, 2005
    15,989
    Toronto, Canada
    I agree with sistermillicent, give her whatever drink it is she likes. Of course, avoid milk and citrus juices as they can be upsetting to the stomach. I do hope she likes soft drinks, the ones with all the sugar in them. You might want to let a glassful stand for a while to get rid of some of the carbonation.

    Edited to add: Sorry, cross-posted, didn't realize your sister doesn't like cold drinks.
     
  6. U2swan

    U2swan Registered User

    Mar 13, 2015
    17
    London
    Hi Cat27, my sister no longer eats ice lolly/cream.
     
  7. Cat27

    Cat27 Volunteer Moderator

    Feb 27, 2015
    9,768
    Merseyside
    Sorry love.
     
  8. U2swan

    U2swan Registered User

    Mar 13, 2015
    17
    London
    My sister at the start of last year was a size 24. She is now a size 18/16.
     
  9. sistermillicent

    sistermillicent Registered User

    Jan 30, 2009
    2,951
    let us know how you get on this evening and how your sister is, I hope she manages something to drink eventually, it must be such a worry for you. Would she accept a drink better from someone else? My mum could be very stubborn with us but would cooperate with a stranger immediately
     
  10. U2swan

    U2swan Registered User

    Mar 13, 2015
    17
    London
    Hi sistermillicent ,Canadian Joanne & Cat27, I contacted 111. I am waiting for the doctor to get back to me. In the meantime I should try getting my sister to drink some coffee. Any fluid is fluid.
     
  11. U2swan

    U2swan Registered User

    Mar 13, 2015
    17
    London
    Dr called back. Try and get sister to drink. If she vomits again than she would need to be reassess.
     
  12. CeliaThePoet

    CeliaThePoet Registered User

    Dec 7, 2013
    614
    Buffalo, NY, USA
    I think your GP may be missing the point--it sounds like your sister is having trouble swallowing, which may mean that reflex is starting to deteriorate. Ask for a SALT assessment.
     
  13. U2swan

    U2swan Registered User

    Mar 13, 2015
    17
    London
    Thank you CeliaThePoet, I will phone our GP in the morning.
     
  14. PeggySmith

    PeggySmith Registered User

    Apr 16, 2012
    1,685
    BANES
  15. U2swan

    U2swan Registered User

    Mar 13, 2015
    17
    London
    Hi PeggySmith, Nope.
     
  16. sistermillicent

    sistermillicent Registered User

    Jan 30, 2009
    2,951
    not impressed with the doctor's advice, as if you haven't been trying!!
     
  17. U2swan

    U2swan Registered User

    Mar 13, 2015
    17
    London
    Sometimes I think the "health professionals" can make you feel inadequate.
     
  18. Lindy50

    Lindy50 Registered User

    Dec 11, 2013
    5,287
    Cotswolds
    How long has your sister been resisting food and drink? You mention that she has lost a lot of weight over the last year.
    Do you have any help with or for her, like home support or a day centre?

    It sounds to me as if your sister could do with a thorough assessment of her needs.....has this been done? And do you get any help for yourself as a carer? Like a break?

    Hope your sister improves soon.

    Take care

    Lindy xx
     
  19. HelenInBC

    HelenInBC Registered User

    Mar 23, 2013
    243
    I'm wondering, is your sister still producing urine? Less frequent and darker urine are signs of dehydration. Also look for dry mouth (inside), and signs of dizziness when standing. If she can't pass urine for more than 8 hours i would suggest taking her to A&E for IV fluids. Have you tried soups or broth?
    I hope things are better tomorrow.
     
  20. U2swan

    U2swan Registered User

    Mar 13, 2015
    17
    London
    Update from yesterday

    I thank you all for your best wishes and advice so much appreciate it.

    My sister had a good night. I managed to get her to drink half a cup of tea. This morning I contacted the hospital because sis was also diagnosed with acute autoimmune neutropenia. The consultant was concerned about her symptoms and I was told bring her in asap. Sister had a blood test and check up. All results were ok. We still have to go back next week for another blood test. In the meantime, I have to take her temperature 3 times a day until the next blood test.

    Good news, sis wanted something to eat. I did not mess around we had lunch. I was almost in tears. What a relief. I have even tempted her to have a warm blackcurrant drink in a huge mug when we got home.

    I know I should not stress too much but my sisters are my world. (Our little sister is deaf/blind).
     

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