Absolutely @DennyD , little or no proactive follow ups or interest, everything is reactive with carers chasing help from professionals all all stages but the public get the impression we are inundated with help.
How in touch she GP surgery be?
- Thread starter Agzy
- Start date
Kennett, as JenniferJean mentions, it is normal to get upset and feel that you're not treating your loved one with respect and understanding. It happens, caring responsibilities are exhausting, it's not a natural situation to be in and we're human. From what I've read the help and support provided by the professional services differs very much around the country. There are some very good ones, not so good and terrible ones. But we have no option to start with what is on offer to us and then take it from there. I felt our GP services and dementia services offered through NHS were not working for us, so I turned to the Alzheimer's association. I've had very good support from our local society. Although because of funding cuts they've had to stop the activities he attended (nothing to do with COVID). They were a real help to him and gave me a short break. However, just me talking to my contact there helped. These chats gave me perspective at times when I needed it. There is very little in my area, and what there is, requires payment, so not easy. I get angry, frustrated, especially as I gave up a reasonably paid job last year (and as such my pension) to care for my husband. I felt I had no choice, he needed me at home and I do not blame him. But I find myself blaming the situation and as mentioned by Agzy, the public get the impression that us carers are well supported and there are resources in place that supposedly help us manage. Unfortunately this is not so. We carry on as best we can and I keep my fingers crossed, nothing happens to me so I can keep being here for him - in my view, there's no other way to say it.
hello @Kennett
a warm welcome to DTP
have you contacted your Local Authority Adult Services for an assessment of your wife's care needs (after which there will be an assessment of her finances, so don't discuss her financial situation until after the care needs assessment) and you have the right to a carer's assessment too - hopefully a care package will be suggested to support you both
you might get in touch with Admiral Nurses who are there to help carers
An Admiral Nurse is a Specialist Dementia Nurse | Dementia UK
this may6 help find local services ... though many are, sadly, not happening at the moment
Find support near you | Alzheimer's Society
some of the suggestions on this thread may help you
Recommended thread - Compassionate Communication with the Memory Impaired | Dementia Talking Point (alzheimers.org.uk)
I just read your other post and as your wife doesn't have a diagnosis, if you have concerns the first thing to do is contact her GP ... even though you are her husband, patient confidentiality means they may not be able to discuss her situation but they do have to note any information and concerns from a family member ... over the next week you might make a diary of things you notice so you have specific examples for the GP, and also make some bullet points of changes you have noticed over the last 1,2,3 years eg tasks your wife now has difficulty with, things you have to support her with ... maybe e-mail first and follow up with a call - some GPs call their patient in for a well woman check up or use giving the fly jab as a means to make contact ... your wife can give the GP her permission for you to ask questions and share info, might she write a letter to them
it could be that there are other causes to the symptoms you see eg a vitamin deficiency, so the GP will check, usually taking bloods for testing
you'd both be wise to get Lasting Powers of Attorney and up to date wills in place ... maybe.so your wife doesn't feel excluded, have her as one of your Attorneys ... probably best to have 2 Attorneys each to act jointly and severally, with a replacement if you have someone in mind
Make, register or end a lasting power of attorney - GOV.UK (www.gov.uk)
we're a supportive lot, so post anytime with anything that's on your mind - you could start your own thread in this forum
(1) I have a partner with dementia | Dementia Talking Point (alzheimers.org.uk)
a warm welcome to DTP
have you contacted your Local Authority Adult Services for an assessment of your wife's care needs (after which there will be an assessment of her finances, so don't discuss her financial situation until after the care needs assessment) and you have the right to a carer's assessment too - hopefully a care package will be suggested to support you both
you might get in touch with Admiral Nurses who are there to help carers
An Admiral Nurse is a Specialist Dementia Nurse | Dementia UK
this may6 help find local services ... though many are, sadly, not happening at the moment
Find support near you | Alzheimer's Society
some of the suggestions on this thread may help you
Recommended thread - Compassionate Communication with the Memory Impaired | Dementia Talking Point (alzheimers.org.uk)
I just read your other post and as your wife doesn't have a diagnosis, if you have concerns the first thing to do is contact her GP ... even though you are her husband, patient confidentiality means they may not be able to discuss her situation but they do have to note any information and concerns from a family member ... over the next week you might make a diary of things you notice so you have specific examples for the GP, and also make some bullet points of changes you have noticed over the last 1,2,3 years eg tasks your wife now has difficulty with, things you have to support her with ... maybe e-mail first and follow up with a call - some GPs call their patient in for a well woman check up or use giving the fly jab as a means to make contact ... your wife can give the GP her permission for you to ask questions and share info, might she write a letter to them
it could be that there are other causes to the symptoms you see eg a vitamin deficiency, so the GP will check, usually taking bloods for testing
you'd both be wise to get Lasting Powers of Attorney and up to date wills in place ... maybe.so your wife doesn't feel excluded, have her as one of your Attorneys ... probably best to have 2 Attorneys each to act jointly and severally, with a replacement if you have someone in mind
Make, register or end a lasting power of attorney - GOV.UK (www.gov.uk)
we're a supportive lot, so post anytime with anything that's on your mind - you could start your own thread in this forum
(1) I have a partner with dementia | Dementia Talking Point (alzheimers.org.uk)
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