How do i makexthe right care decision for my mother

Peej

New member
Mar 29, 2024
1
0
Hello, I’m totally new to here and will try not to waffle too much!! 😬
I believe my mother has dementia which has been progressively getting worse over the last 4 years. Think ive been in denial. Started the memory test about a month ago but no appointments yet. She has refused any assessments or help other than me or my 3 children (in their early 20s) for years saying it’s just old age. Hates anything to do with mental health. She has been housebound, not showering (last shower 3 months ago 😱) or letting me help, doesn’t eat much except porridge and breakfast bars, forgets conversations and is on a loop, cant remember much now. Lives by herself. Upstair bathroom, has stairlift but cant remember how to use it, has toileting accidents and due to refusing to get dressed (nightie only) and wont wear pants it gets messy!! 😭
14 days ago she was admitted to hospital with low haemoglobin levels, then got covid and chest infection. Since then been medically discharged but deemed incapable of caring for herself by the OT. Waiting for more advice but communication is atrocious there.
Have friends advising she needs to be in carehome and OT said maybe try more care at home. Looking at her in hospital i cant see her being by herself again as she has bad delirium now. Waiting for hospital to contact me with social services etc.

How do i make these decisions?

She didnt want to go into care before hospital but now telling staff she can't live alone. Not sure shes really capable of making these decisions as doesn’t realise shes not clean, smells, not eaten etc!
She has savings so wouldn't get care free but only enough for maybe 3 years of care. Shes only 76 and no idea how long she will be with us for.
Feel very overwhelmed, sole carer, divorced, my mental health is poor, and given up jobs to care for her (now work in a mundane shop for 2 days a week and don't really cover my own bills!)

Has anyone else been in this sitatuon, WHAT DO I DO?!!!
 

Izzy

Volunteer Moderator
Aug 31, 2003
74,456
0
72
Dundee
Welcome to the forum @Peej

I'm sorry to read about your mother's situation It sounds as if you are really struggling and not in a position to offer your mum the care she needs when she comes out of hospital

It might be useful to have a look at this link before you met with Social Services.

 

northumbrian_k

Volunteer Host
Mar 2, 2017
4,501
0
Newcastle
Hi @Peej and welcome to Dementia Support Forum. I am sorry to hear about your mother. I don't have direct experience of this as it is my wife who has dementia but I know that many of our members do have and will be able to offer helpful suggestions. If your mother can self-fund that does mean that a care home could be considered from the outset, although there are questions to answer over who is able to manage her finances (do you or anyone else have Power of Attorney?), her level of understanding and willingness (or not) to go into a care home. If she hasn't had an adult needs assessment that would be helpful as well as trying to get a diagnosis. There is specific guidance about care homes which I have linked to below. There's a lot of information on this site and also from the Alzheimer's Society (second link).

 
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SAP

Registered User
Feb 18, 2017
1,348
0
From what you say it does sound like you mum would be better cared for and safer in a home, she might even thrive for a while in an environment where she is getting better food and personal care. At this stage it is not about what your mum wants and all about what she needs. As @northumbrian_k has said a lot comes down to if there is an LPA in place and what the funding situation would be.