My husband was diagnosed almost 18 months ago with early stage frontal love dementia. Since then he has had pneumonia and sepsis which has seriously affected his dementia. He has no specialist input, just under care of GP. As his sole carer I know he has deteriorated considerably but how do I know if he would still be assessed as in early stages. I've talked to GP and expressed my concerns about his worsening abilities but she just tells me I'm doing a great job of looking after him! I need a break but when he had a care needs assessment following the pneumonia they said he didn't quality for any input from the local authority because he can still manage personal care. Therefore I can't get help so that I can get away. I can't leave him at home on his own because he can't look after himself. Every time I suggest that I want to go to visit my family he makes it clear he doesn't want me to go and doesn't understand why I should need a break. I feel tied and tired. Any suggestions?
How do I know if he would still be considered to be in early stages?
- Thread starter yorkie46
- Start date
Get a carers assessment done - you are entitled to one by law and they will make recommendations. Good Luck
My OH has symptoms of Frontal Lobe dementia, although he doesnt yet have a diagnosis and has, until recently, been able to manage personal care. Nevertheless he was able to go in for respite
Thank @maryjoan . I had a carers assessment soon after he was diagnosed. The result of that was that I receive a carers allowance of £34 a month because the local authority cannot offer any other help or supoort. This money can only be used for things like having coffees out with my husband or other family or friends or for things for me like hairdressing, massage etc. To be honest it's not what I wanted it needed but I take it nevertheless.
Thanks @canary , yes he could go for respite if I organise it and pay for it. As I understand it as he isn't assessed as having care needs he can't have a financial assessment. I did organise respite last October but in the end I chickened out and cancelled, I just couldn't leave him in a care home and get on a train to.travel 250 miles away. I'm still not sure I can.
Thanks @canary , yes he could go for respite if I organise it and pay for it. As I understand it as he isn't assessed as having care needs he can't have a financial assessment. I did organise respite last October but in the end I chickened out and cancelled, I just couldn't leave him in a care home and get on a train to.travel 250 miles away. I'm still not sure I can.
